Brain thinks I have a cold nose but I don’t

[Bisher]

Can anyone help, my brain thinks my nose is cold, but when I feel my nose it’s the same temperature as the rest of my face, is this a symptom of b12 deficiency that anyone else has

[Nackapan]

I get a numb nose that Feels cold. Used tk get numbness all across my face.

Nerve endings.

My face okay now so I think is involved in b1e deficiency

[Bisher in reply to Nackapan]

Thanks it is reassuring to know I’m not going bonkers

[wedgewood]

I have feet that my brain says are painfully burning hot ( which is not that much different to the feeling of being totally frozen ) but which are in fact normal temperature . This is definitely a pernicious anaemia symptom . The myelin sheath of the nerves is permanently damaged by lack of B12 for a lengthy period .

[Bisher in reply to wedgewood]

Can b12 injections help repair the nerves

[Nackapan in reply to Bisher]

Yes

[Bisher in reply to Nackapan]

Thanks for responding

[wedgewood in reply to Bisher]

Yes , but left for too long without treatment, the myelin sheath can be irreversibly damaged .

[Bisher in reply to wedgewood]

Thank you for replying

[earthnymph]

Hi Bisher it’s true that the damage can be irreversible if left too long, I don’t know how long is too long. I had a numb toe which was put down to a trapped nerve, then diabetes damage when that was finally and accidentally diagnosed. Eventually a few years on, PA was diagnosed. I began self injecting every 2 days after support and information on here, probably about 9 or 10 months after diagnosis. 12 weekly then 8 weekly jabs from GP weren’t enough. 8 years after my toe went numb the feeling came back, absolutely certain it was down to b12 deficiency. Good luck with your journey 😊

[MoKayD]

The tip of my nose was freezing for a couple of years. I was constantly cupping my hand over my nose to try to warm it. I was seriously thinking of knitting a nose cozy to keep it warm. I still remember how after my very first B12 injection the tip of my nose started to tingle and then it started to feel warm. It was wonderful. It took many more injections before it stayed warm though. Now my nose is only cold when it's outside in cold weather.

[Cherylclaire Forum Support]

B12 is an amazing vitamin which does not get appreciated until you are deficient. I'd never even heard of it until I was lacking in it.

I was recently told by a consultant that my constantly burning tongue perhaps only feels to me as if it's burning. Apparently this is a named condition (which I've forgotten) -and even has treatment: who knew ?

Think he was surprised that I did not protest.

I cannot rule this out because when I was really ill, my sense of smell informed me that a local supermarket reeked of raw sewage ! The fact that none of the other shoppers were aware did not stop my brain interpreting it this way. Possibly forgot what the "olfactory code" for fruit and veg was ! Luckily doesn't happen now.

A fairly common "mis-sensation" experienced here is one of drops of cold water trickling down skin.

"Formication" (read carefully), another one noted here, is the feeling of ants crawling just under surface of skin. It always felt to me more like very small iron filings flipping over in a group (as in school experiments with magnets) - down arms and legs towards my fingers and soles of feet. Always followed by exhaustion and a long nap. Both also a thing of the past- the sensation and need for naps.

If you aren't sure, check on here. You will find it a bit of a relief that these things are happening to others too -and can go away in time.

I will not take any medical substance if it does turn out to be an imagined burning tongue - just knowing that I can freely ignore it will do for me.

The only numbness I have is outer shins on both legs. After years of B12 injections, I'm not expecting to get a return of sensation now. For a brief period last summer, I had foot drop too which kept making me trip up - had to raise knees higher to accommodate for floppy feet or flip them forward like a clown-walk. Realised I was doing way too much physically and mentally and just needed to stop. A signal that nothing is ever really "cured".

I consider myself very lucky. Others have more severe remaining nerve problems and struggle with walking. Neurological symptoms should be treated on a different regime and as early as possible to prevent deterioration. I expect the long wait for neurologist appointments will have got much longer during covid so the sooner the referral is made, the better.