HELP - What are those guidelines call... - Pernicious Anaemi...

Pernicious Anaemia Society

32,318 members23,534 posts

HELP - What are those guidelines called again?

mikeg71 profile image
3 Replies

Please will someone tell me what the name of the doctor guidelines are that say that doctors have to treat us as a patient by viewing our entire symptom range and not just relying on blood tests to prescribe B12 injections.

Many thanks, I know the GP Warriors on here will know this type of thing off the tops of their heads.

Written by
mikeg71 profile image
mikeg71
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Gambit62 profile image
Gambit62Administrator

Strictly speaking guidelines are guidelines so GPs don't have to follow them.

However, if it came to a legal case they should be taken into account as establishing the standards of care that GPs should be applying so from a professional standpoint they should be taking notice of them

I presume you are based in the UK - and probably in England - in which case the main guidelines are the NICE guidelines in relation to GP - one for cobalamin and folate deficiencies can be found here ... however, it isn't the best guideline in the world as it is extremely confusing when it comes to B12 and anaemia and it is very easy to understand why GPs end up thinking that they are treating the anaemia that results from B12D rather than B12D

cks.nice.org.uk/anaemia-b12...

The other guidelines that are often quote here and relevant to the UK are the BCSH guidelines that give guideance for haematologists and they can be found here

bcshguidelines.com/document...

This alert is also pertinant to interpretation of B12 serum test

ukneqas-haematinics.org.uk/...

Polaris profile image
Polaris

Not strictly guidelines but is the latest BMJ research document, which includes an excellent summary :

cmim.org/pdf2014/funcion.ph...

Sleepybunny profile image
Sleepybunny

Hi,

There's a good summary of the BCSH guidelines on the PAS website in the library section.

pernicious-anaemia-society.org

It can be helpful to know what the management guidelines for B12 deficiency are for the NHS in your area. You may be able to track it down by going to the NHS website for your area and doing a search. You may be able to find it by putting in an FOI request (Freedom of Information). Regional guidelines can vary and some have not been updated since the BCSH guidelines came out.

Not what you're looking for?

You may also like...

Hi Again - b12 and Peripheral Neuropathy (PN) - its wasnt the Alcohol?

Hi again lovely folks, and a big thanks to those "constant" heroes in this forum; who stick around...

Gluten and B12 deficiency

Is there a link between B12 deficiency and gluten sensitivity? My neuropathy has massively improved...

AUGH!

I have been battling for about 10 years with numerous health issues and was finally diagnosed about...

Me again

I will be self injecting. I was told to get my supplies from medisave but it won't let me order...

Bittersweet Bonds - Pernicious Anemia and the Doctor-Patient Dance

Not sure if this is any good but as I was hating my doctors it occurred to me how much I need them....