About 7/8 years ago, I was diagnosed with ME. It was a huge fight to get a diagnosis - I had three iron tests which all came back normal (yet the GP insisted I must be iron deficient), the next doc told me I was suddenly unfit (despite doing sports five times a week), and the next told me I had "Monday morning syndrome", followed by referring me to a paediatrician at the age of 17 as they would be "more sympathetic". Of course the paediatrician refused to see me as I was too old, so I ended up having to go private and see a neurologist. I had a brain scan which showed nothing and was diagnosed with ME.
The last couple of months, I've been having pins & needles in my hands and face, and shooting nerve pains in my right arm. The doc I saw tested my B12 amongst other things. The only results I've got are that my B12 levels are abnormally low and there's something up with my blood count too. I can't get more answers til I see my GP next week.
I want to know a few things if possible. Reading up on B12, I'm realising how many symptoms I've had (for a while) that fit with B12D/PA. I have next to no sense of smell, I'm massively fatigued, I'm tired all the time, there's the nerve pain, and the mood swings etc. I've been blaming all of this on a combination of the ME and odd things that happen when you're pregnant/have babies.
So is it possible that I've had B12D this whole time and it has been getting progressively worse, and I never had ME (I don't think my B12 was ever tested)!? Or could I have both?
Also - what are the next steps with my GP?- can I expect more blood tests or will I just be put on injections or something (I'm in the UK)? Will I ever get my sense of smell back, will my moods even out and the mind fog go, and will the nerve pain stop? Which aspects of it are likely to be permanent? Thanks