Hi, I've had a bit of a disappointing turn of events with my B12 loading shots that are being used to treat Trigeminal Neuralgia. At first, on just self-prescribed sublingual cyanocobalamin tincture I got a marked drop in my neuralgia pain. I was dead chuffed. When I finally got my shots they seemed to help too. They certainly didn't hinder. In fact, by just the second shot I had a day where my mouth was as close to pain-free as it has been in 9 months; not even strong anti-convulsants had managed that, and I was thrilled.
However, the day after that things started to get worse. At first it was just a drop back down to the 'normal' pain. I was disappointed, but not crushed. I hadn't expected it to heal myelin sheath brain damage in a matter of days (ok, I'd hoped, but I knew it wasn't likely). However, today, a day after my third shot, the pain has actually got even worse. Not only worse, but it's gone back to the way it was in the early days of the neuralgia, and it's NEVER done that before. My question is why? What's going on?
B12 is not a drug so it can't be causing a bad reaction with the anti-convulsants, nor can it (surely?) be overriding them in some way (I still take two different anti-convulsants to manage the condition). So what the hell IS it doing? It's too big a coincidence that the pain has gone back to the way it was in the early days of the condition, so what's going on?
I've read on these forums that B12 can sometimes make the pain worse at first, is it possible that that's what's happening? I don't want to be falsely reassured here, so please don't sugar-coat it if you think B12 is not the problem. I could genuinely swear these shots are doing me good. In lots of ways. No more waking up with black dread. No more being unable to get myself out of bed. Except with tiredness, which I'm also getting more severely - I have to say it, almost as if my body is working harder. But on other days I have more energy than I've had in a long time. I feel sharper too - and that's no mean feat when you consider I'm on powerful drugs that effectively recreate dementia. I really don't want to build up some ridiculous fantasy picture here of B12 working when it isn't, so I need to know if anyone has experienced something similar. And if so, when does it get better?
I ask that in particular because I need to know whether to push for more of these shots or not when my loading period expires. Because Trigeminal Neuralgia is not a recognised symptom of B12 deficiency there's no real treatment protocol; I'm on my own, so any experience or insight anyone can offer that might reflect what's happening would be most appreciated.