I was diagnosed with PA about 3 months ago - turns out my B12 was low (103) since 2011 and doc did nothing about it, now 65 and neurological issues.
I have been having B12 shots every other day ( after much battling with the doc) for 2 months now, nurses let me do some at home, well my hubby does tham as I shake too much, with one appointment a week in the surgery so that they can keep an eye on my progress.
I asked for homocystene and transcobalamine tests as I am not sure I am absorbing the B12 shots, and the doc told me that I cannot have these ont he NHS.
I asked him how else he was going to see if the B12 was effective, and he said he was going to stop giving me B12 as I must now be full.
I asked him how he can be sure - he said he asked a neurologist on a course he had just been on, and was told I had had plenty of shots and now only needed them once every 2 months.
I do not understand.
My symptoms have not gotten any better. He has not examined me to check any improvement, in fact when he last saw me he asked for an urgent referral to a neurologist ( finally after 6 months of battling him and a letter from my physio and my opthamologist requesting URGENT neurological examination)
how can he stop the injections and not book any appointments to see me or offer any kind of treament plan for my symptoms ( now so bad I cannot walk - am in a wheelchair or confined to bed - jsut to give context - before these issues I was in a physical job, dancing, doing martial arts, mentally quick etc - now cannot walk, cannot wash my own hair, had to have my lovely long red hair cut off as I could no longer brush it, am in pain all day, every day)
can someone please help - -what am I supposed to do now?
Is he just saying it is not B12 and stopping treatment so that he is not in trouble for not treating me for 3 years?
I am not trying to sue him - I don't understand.
any help or advice welcome - at the end of my tether.