Concerns over vaccine in elderly in norway - Cure Parkinson's
Concerns over vaccine in elderly in norway
The article is not revealing the age of the ones who died, but hints at the possibility that they might be in their very late ages ( think late 80's) and with serious comorbidities. What I felt distressing is the fact that the article also mentions that they might have little to live for anyways.
Thanks, that is interesting. I wish they would have indicated if most of those deaths had occurred after the 1st or second shot. If it is truly vaccine related we in US should have seen significant number of deaths given that more ppl got vaccinated. Any vaccination experience accounts from people on this forum would be appreciated. I am scheduled to get my 1st shot tomorrow
My dad is over 80 n had his first shot in dec n is feeling much happier ss he feels safer. The report in norway is based in people who were unwell.
Yes, it does appear to be the reason they couldn’t handle it. I guess all vaccines have a few people who react badly to them.
My 1st shot was uneventful by the way
Well done glad for you
Don't know if this 100% accurate, but my sister, who is a health care professional, said the 29+ deaths of elderly in Norway were all very ill patients in hospice and/or final stage of life. Doesn't seem right to give them the vaccine. Why put them through that agony, and why not reserve the doses for someone younger who needs it, like a teacher?
Yes, makes no sense to me either. To me the best people to give it to are the ones who are out and about, socialising, working and mingling and running errands, whatever the age. That is so long as being immune means you can’t carry it of course. But if you can carry it after being immunised it might make you more of a danger if you are a carrier and not symptomatic.
Ms LAJ I read one of your recent posts where you started that your husband was diagnosed April 2018. I really respect the path you have taken beginning with a nature path. My husband - 67 hasn't been clinically diagnosed yet. We did see a neurologist, she told me to come back in a year, go on vacation and get some long term health care. At first I went through some deep sadness that involved a lot of tears, from there I started working on researching what I can do to slow the progression. Now that I have read many articles, I am truly disappointed in the DR., because she could have suggested so much I could get started on. She said she wouldn't write anything down to give me some time for insurance etc. which I am grateful, but we won't be returning to her. So much for my woes.
I read your post several times and will probably return with more questions. But for now my main question is about Hardy's daily nutrients. I have found them on Amazon but there are two types - one is with added vitamins. Is that the one you are using? And I am curious about the Restore Gold?
I have started supplements, many that you suggested. I also got him mucuna right away, it is a powder he puts in yogurt - calls it saw dust. When that is gone, I have consider tablets, but haven't been able to determine if one is more beneficial then the other. I also managed to find some broad bean (mucuna) roasted nuts that I keep by his chair. He seems to like them. I have no idea if a roasted bean is as good, but I am trying to cover all the basis. He also is now doing daily walks. The one thing I see the most is the importance of exercise. He is a busy guy already, hardly sits down, but has added the walk to exercise the dogs he tells me. I have started to follow you on healthUnlocked and just saw your post on the vaccine. We have discussed it, but haven't signed up for it yet. What do you think you and your husband will do? We live in the hills of Idaho so we are fairly isolated to begin with, pick our groceries already bagged at the market, and limited our trips, gathering and keep our distance. We are not in any hurry with the vaccine, waiting to see long term data. I would appreciate any help or advice you are willing to share. Thank you for your time. Sincerely - ghMac Gail Hedger MacDonald
Hi Gail, yes I had the same feelings too and still have moments where I am frustrated and sad, particularly as I cannot go away and leave him alone, but he won’t come with me anywhere so I feel trapped here at home.
This is the Hardys daily essential nutrients.
hardynutritionals.com/produ.... This had an amazing effect very quickly on his mood. The one thing that has had a noticeable effect within. 3 days. He takes the full 12 a day. You need to get the ok from your doctor for this. Ring their free help line for advice.
Restore gold he is still taking but as he was taking other things at the same time I am not sure whether these are helping or not as too many things were trialled at once.
Horny goat weed he took for a while and it seemed to be helping with motivation but he went off it when starting on C/L just in case it interfered. It also had a noticeable effect within 3 days especially with libido.
He went off all supplements for a short period when he was having acute anxiety as we were going to visit doctor for it so thought it would be the first things the doctor would blame but deteriorated definitely while not taking them so has gone back on them all.
The mannitol he takes is the synuclein from this guy donmccammon@gmail.com.
He uses vitacost 500mg thiamine hydrochloride. Now he takes 1 or 2 alternating daily so on average 750mg. He started much higher but has reduced over time as he seemed to need less.
We have just started trialling mucuna so can’t really comment on that but is trying 1 NOW Mucuna with each madopar 62.5, 3 times per day.
Sertraline and mirtazapine I have reduced greatly to almost nothing. I really believe the mirtazapine was responsible for his initial condition and the lower the dose the more like his old self he becomes. He now smiles and uses his face which used to be a blank stare.
Sertraline and levodopa both cause him anxiety at doses too low to be therapeutic but a new (old) drug he has just started at a very low dose Kemadrin is helping we think to offset side effects.
Exercise he walks most days for an hour. I would like him to to flexibility and strengthening exercises on his upper body and try and loosen up his very stiff neck and shoulders but he just will not. Not interested.
I feel one of his worst symptoms is the loss of dexterity of his hands and I think it may be more a physical structural problem rather than chemical although he does think the levodopa when he started it seemed to make his arms stiffer which was annoying as it was what he was prescribed it for. I think the Kemadrin might be helping that as he thinks he was able to rearrange his cards at bridge better recently. I think his very stiff immobile shoulders may be affecting the movement in his arms and hands, and sitting at a computer desk leaning forward is definitely distorting his back , making his shoulder blades stick out. I wonder if it is this cutting off circulation to his hands.
I noticed in Laurie Mishleys latest talk she put loneliness as a top thing which speeds up progression and he did deteriorate over lockdown when he couldn’t get to bridge with his friends.
With the vaccine because we live in New Zealand we have no community transmission at the moment so we will hold off and see whether there are any side effects and which works best before having one unless it gets into our community. We are lucky to be in this position and I’m not sure what I would do if exposed on a daily basis to possibly infected people.
Ps, what are his main symptoms and is he taking any medication, is he over weight, does he have rosacea?
Thank You so much for you quick response. I now know someone in New Zealand! How cool is that? Boy your country did a great job with Covid!!!! We are just full of wackos.
enough said.....
My husband has a few symptoms. His lack of REM sleep has been disruptive - more for me then for him. He has muscle spams while sleeping. I am not sure he even knows, but I know. We have been married 35 years, and I started noticing the nightmares and acting out dreams about 4 years ago. I knew it was different. Finally I heard Alan Alda of Mash speak about this being his first clue. I took him to a neurologist and she said probably, come back in a year. His hands also have tremors - which have been present for at least 2 years.
So we are at the very beginning. I don't think he has done any reading or research but he also hasn't objected to anything I have ask - take walks - or given him mucuna, adding supplements. He knows I am reading/researching - I share a little info at a time.
Right now I am just trying to figure out how to slow the progression. My plan is to go to a nutritionist - or nature path, but I have been doing a lot of reading. from what I have read once you start taking medication it becomes somewhat of a nightmare. So I am trying to slow it down.
I addressed the sleeping /dreams with melatonin, and 5HTP.
One night he woke up with a cramp in thigh so I added magnesium.
He takes the mucuna powder in yogurt. I have cut out as much diary as possible, I read it was a trigger. I have made our yogurt for decades, but can't figure out how to do it with almond or coconut milk. I found some broad bean (mucuna) nuts at nuts.com and he eats them.
My next step has been vit B1 for the tremors. I have had difficulty figuring out dosage, and understand that folks are doing HDT (?) high dosage therapy. But since it is water soluble I went with 500 mg. just to see if it would make a difference. I see your husband takes Vit B1.
And then the restore gold seems to be effective in the early stages - not looking forward to telling him it is 16 pills a day. But I think it is next on list.
He is a "cowboy"......and has told me when he can't ride his horse he is out of here.
I go between floundering, crying, researching and praying. I am so sorry you feel trapped at home. Just read an article on care givers, my heart goes out to you. The only other person I have told is our daughter who I really don't think has a clue what PD is. I hope you can figure out a way to get a break. Of course I have no idea of your situation and I am hesitant to make any suggestions, but would it be possible to have a bridge player friend come visit while you go get a pedicure?
So I was reaching out because your posts were so detailed and informative.
I think I will also add the Hardy - put just normal dose for now? he takes 12 of those and the 16 R gold? Boy howdy...... You said the Hardy was the quickest and most effective, did you start on such a high dose? This is the problem I run into - - -dosage.
Did his Dr suggest Rgold? I have read it is effective in the early stages in slowing progression.
I'll remember about horny goat weed as well. 
What is mannitol ? and madopar ? Kemadrin? are these all prec. drugs?
I asked him about a boxing sack but he said no.
I plan to get him to a gym .......when I think it is time. HE WILL HATE THAT
But I will win that fight! Exercise seems to be a major factor in slowing the progression.
He is not overweight, thin as a rail, tall and thin and of course I am short and fat. He does not have roscea. He is a busy, busy guy. We have a few acres and some horses, chickens, dogs and the occasional cat that wanders in. Wild turkeys, deer, elk, coyotes, hawks, eagles, ---- some times a bear, and snakes including rattlers. He spent his time today fixing up an addition to our side shed for extra chickens, we will raise 25 broiler chickens this spring, all organic , no GMO. We also eat organic as much as possible. I eat no bread but he does do sourdough. I have been wondering about gluten.
I could not keep this place up by myself.
Thank you so much for responding and asking after him. His name is Terry.
And you my dear, what does LAJ stand for? It is Ok if you would rather not tell me.
Sincerely and gratefully your new friend from Idaho.
ghMac
Do you know, are these communications private or can everyone read them? Should we go to email?
Communications are available to see on the thread for all. I will contact you via private messaging which is private.
You’re lucky as he has time to possibly ward off the Parkinson’s if he makes changes now. If you watch the recent Laurie Mischley interview she goes through changes that can help. It’s worth the time and get him to watch it too so he knows he has to go hard with a plan if he wants to stay fit and active. She says if you make lifestyle changes , the earlier the better you can reduce the slope of your progression graph and even reduce the severity . The end result is you may be able to ward off the worst of the symptoms until you are elderly and then you will be no different to anyone else in the age group!
I would ring Hardys and discuss dosage. If he is on antidepressant they need the doctors ok to manage it as he will become over medicated as they work. I expect they will say start with 1x 3 per day, then after a few days go up to 2 then 3 then 4. Most people with a chronic illness need the 12 per day. 4 is for people with no health issues as a preventative measure.
Does he have depression, apathy, anxiety?
Diet I would cut out sugar. Easier to go cold Turkey than cut down. If you do it too you will likely lose weight and prevent your own health issues. I haven’t been trying to lose weight but I made the same changes as he did to support him and I have lost 10 kg in 2 years too! And have way more energy and less brain fog.
Gluten seems to be a trigger for many . Try cutting that out but don’t replace with gluten free junk products but instead other healthy snacks like nuts with no salt, carrot sticks with humus dip etc. Stop baking, making desserts , eat less bread. But make sure you replace with enough calories eg extra oils as it is not good if he is losing more weight.
Cut out seed oils and replace with organic virgin olive oil. Look up online reviews for these as many are fake and cut with canola oil. Don’t eat anything GMO. Make sure he isn’t spraying chemicals around.
Read packaging and don’t buy anything with sugar or unnatural additives that are man made or numbers. That is almost everything packaged. It’s a hard learning curve. Laurie says don’t eat canned food, or frozen vegetables amd obviously no icecream, flavoured yoghurts etc. add kimchi, sauerkraut, fermented foods. Wine is good at least🤣
There are lots of posts here on mannitol. It has seemed promising. Some people swear by it. Not a prescription drug. He added mannitol, b1 and restore gold at the same time so not sure which helped or if they all did.
Madopar and sinemet are the Parkinson’s levodopa drugs which are prescription only. Mucuna is the bean it originally came from and has other compounds in it too. The pharmaceuticals also have other compounds that stop the levodopa breaking down quickly in the gut and not reaching the brain. It needs to get into the brain to be converted to dopamine. Green tea is a natural compound that acts in a similar way, and it is in restore gold. If you aren’t sure about using restore gold perhaps you can just try 1x 4 a day for a bit then add others as you go. Try one thing at a time though or it is hard to say what helps.
Kemadrin is an old drug and has some bad side effects so has lost favour. But it seemed to be the answer the his main issues of stiffness and anxiety which was caused by his meds so I asked the neuro about it. He has agreed to let him try it so he is taking a very low dose. 1/4 morning and night and it seems to be helping a bit without causing side effects. It can be addictive so we won’t go higher at the moment.
Make sure he gets light in the morning, sun on his skin for a short exposure each day for vitamin d. Sun will make him feel better.
Do not let him wind down!! It is very easy if he has apathy to say I am not feeling the best so I will have a day off exercise, or can you do this for me as it is too hard. You have to be tough and say no. If you want to be able to do this in a months time you have to keep doing it for yourself, hard or not. Think of it like a spinning top, once it loses momentum it will fall over. If he starts to not do things next it will be I don’t want to shower today then he won’t be able to get out of bed then he can’t get to the toilet. Remind him of this when he is feeling ok not if he is feeling sorry for himself as bullying is counterproductive.
Be wary of winter. It can be a wind down time. Remind him not to wind down because it’s winter. There is no such thing as bad weather just inappropriate clothing🤣. Quote from my Norwegian sister in law!
It sounds like he is an active guy so that’s a good start. But make sure he stretches out muscles as well as aerobic and strength building exercises. Try new things. If it’s too hard or uncomfortable to try because it’s new that is the very reason you should do it. Get out of your comfort zone. I picture the brain strengthening up the channels inside of things that are easy, and comfortable and familiar, and things that are awkward and difficult and new if they have spindly little pathways will be cut out if you don’t double down on them and make them stronger.
The less appealing something is to do the more dopamine it takes to start them. Horse riding for him is fun so if he is feeling apathetic and won’t do a job because it is hard or unfamiliar get him to go horse riding and that will create the energy in his brain to attempt the harder thing. At least that is how bridge works for my husband. Nagging to do the hard job first before he does the fun thing is counterproductive as he will do neither and feel worse, a failure, useless etc.
And you join in. If you are overweight it is important to do these changes too as you may have your own health problems brewing further down the track if you don’t.
Do you want a punch bag to punch instead of him having one? Why not? Too hard, too new? You can see how he feels.
Get him to show you how to do things he may not be able to do eventually. It will give him pride and make him want to keep control of them as he will be sure he is better at them and knows how to do them right🤣. And it will keep you in your own place longer if you can help him with the chores. Don’t rely on him . You can do most of what he can with some practice, help and perseverance and in the meantime it will be making your brain healthier and your body fitter. Maybe there are some of your usual chores he can do to make up for it if you don’t have time.
LAJ - I forgot to ask you what you think of the ultra sound option. I have seen a lot of good articles on FUS. Is it available in NZ? Also a crazy item I game across was the tasmanian helmet at the tasmanian men's shed? a red light hat?????? Is that a real thing? is it from NZ?
Hi I don’t know anything about those sorts of treatments. I think they are for advanced stages? I don’t think you can get them in NZ but I haven’t researched them yet as he isn’t at that point.
Question re: sertraline as cause of anxiety. I have a family member who was on 100 mg for depression, but as she recovered over 5 yrs she gradually reduced her dose, as the more she recovered emotionally,the sleepier she became on the meds. She is now at 25 mg daily, which is very low, too low to be therapeutic, say her doctors, who tell her to just quit cold turkey. She has tried to do so, repeatedly, but has brain zaps and dizziness. Also, she has noticed that sertraline seems to have turned against her and has now made her anxious when she takes it.
Yes that is exactly what we have found. They just wanted him to keep increasing it but it made him so anxious, then they added mirtazapine and that was when all his problems started. Now I have got him back down to 1/8 of the sertraline tablet. The levodopa drugs all do the same too.
The doctors don’t know what they are talking about. Just stop they say. It’s so low it isn’t doing anything. But that is nonsense. I think those first few molecules are probably the ones that block up all the seratonin receptors, then the excess just washes around. Once the last few molecules leave the receptors they are all raw and fragile. Once you stop are ok for a while, then gradually as it all leaves the system you are hit with a vengeance. This is totally unscientific and made up but it feels like what happens.
What I have done with the mirtazapine is go to a compounding pharmacist and get them to take the prescription and make it up in capsules, diluted with a filler, at a lower dose. Then as he goes down in dose I use a jewellers scale to weigh out the powder and repackage in new capsules. But only decrease by a fraction each week. Especially at the end.
Mirtazapine is 15 mg and I have got it into 3.25mg capsules diluted into 130 mg with filler. Now he takes 1/12 of one of those. He tried stopping from that level and suffered so we will keep decreasing from there.
By the way someone suggested Kemadrin to counter the symptoms so he is now taking 1/4 morning and night. Also he has his apolloneuro wearable device which regulates his heart rate variability and between these things something is helping finally. Kemadrin has nasty side effects so I wouldn’t take a full dose of that one. I think the trick is to balance the two as the side effects seem to offset each other.
“Kemadrin is used to:
treat and relieve the signs of Parkinson’s disease such as:
stiff muscles, paralysis and tremor
problems talking, writing and walking
producing too much saliva and dribbling
sweating and uncontrolled eye movements
depression.
stop side effects called ‘extrapyramidal effects’, which are caused by some medicines. These may include signs similar to the Parkinson’s disease or restlessness and unusual head and body movements.”
These were his main symptoms so I believe are directly caused by his meds.
“4. Possible side effects
Like all medicines, this medicine can cause side effects, although not everybody gets them. The following side effects may happen with this medicine:
If you are taking a medicine for mental illness (called a neuroleptic) at the same time as Kemadrin:
you can develop uncontrolled movements of your face and tongue (tardive dyskinesia). The dose of either of your medicines may need to be adjusted.
unusual body movements, particularly of your hands, arms and legs which may have previously been occurring with the medicine for your mental illness can be made worse by the addition of Kemadrin.
If either of these happens, tell your doctor straight away.
Common (affects less than 1 in 10 people)
problems passing water (urinary retention)
blurred vision
dry mouth
constipation.
Uncommon (affects less than 1 in 100 people)
feeling sick (nausea) or being sick (vomiting)
inflamed gums (gingivitis)
dizziness, nervousness, feeling confused, not knowing where you are (feeling disoriented), reduced concentration or memory, hearing unexpected noises or seeing unexpected sights (hallucinations), anxiety, agitation (feeling irritable)
skin rash.
Rare (affects less than 1 in 1,000 people)
‘psychotic disorder’, which includes symptoms occurring together such as dizziness, confusion, reduced concentration or memory, disorientation, hearing unexpected noises or seeing unexpected sights (hallucinations), anxiety, agitation (feeling irritable).
If any of the side effects gets serious, or if you notice any side effects not listed in this leaflet, please tell your doctor or pharmacist.”
Ps tell her to ring Hardy’s on their free line and ask about their daily essential nutrients. They are specifically promoted as helping the body wean off antidepressants etc. and their product specialists are very helpful. hardynutritionals.com/produ...
Excellent and in-depth explanation. It may not be 'scientific', as you say, but it seems that over time these anecdotal accounts eventually become side effects that ARE acknowledged by the medical community--but only year and years down the road. Within the first few months my husband began taking statins to reduce cholesterol he developed severe lower back pain and couldn't leave the bed. He went to his doctor and his doctor put him on anti-inflammatories and muscle relaxants, told him statins don't cause lower back pain.
I told my husband: first, get off the statins and see what happens. Lo and behold his back pain went away. It was about 2 years later, came out in the news: statins can cause excruciating back pain. Just goes to show you, sometimes the doctors just don't know.
Yes my husband gets every side effect of everything he tries unfortunately so the go slow go low applies to him. He usually can get some benefit from these things at a fraction of the required dose. I think his body doesn’t excrete fast , in fact his DNA test confirms this so things build up fast
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