I am new to Health Unlocked (HU). I recently posted asking for suggestions/experiences of alternative therapies for managing PD medication free. High Dose Thiamine B1 therapy was highlighted as something to consider.
Having done some reading and visited the recommended websites I feel I would like to give it a try, but first wanted to ask a few questions to those who have used, or are still using it, to help manage their PD. Basically I am asking so as to try and avoid any pitfalls.
Here are my questions:
1)Treatment protocol is the result of Dr Constantini’s research. Sadly his website highdosethiamine.org/ states that Dr. Constantini has passed away due to contracting the coronavirus earlier this year. I note from posts on HU that some people have contacted his clinic and received advice/guidance. Is this the preferred way to do this and if so does anyone happen to know whether his practice is still accepting email referrals and willing to help/guide people like me?
2)From the links to various sites I noted they mention doses as if it is possible to self-treat, but there is some range with one recommendation saying start as low as 25 mg and another stating start high 2 g and then reduce if PD symptoms worsen.
I would really appreciate any advice on getting started, in particular the starting dose.
3)For those already on the protocol I would like to ask whether you are using tablets, capsules, liquid (liposomal) or powder Thiamine B1 and depending on your answer are there any brands you recommend and any to avoid?
For example on b14pd.com/ lists a couple of suppliers of 500mg tablets which at the 2 g dose = 4 tablets per day ( 2 at 8 am & 2 at noon). However, it means that any fine tuning would be to within 500 mg. Is anyone using 100 mg tablets in order to better fine tune their dosage?
Also does dose change depending on whether it is in tablet, capsule, liquid or powder?
As someone who suffers slightly with my swallowing I fear taking lots of tablets twice daily may make things difficult.
4)Finally I note that the recommendation is to avoid B6 if on PD medication as there may be some interference of uptake. Does anyone know whether if you are not on medication it is ok to take B6 as part of a B complex and whether it is useful to take the extra B vitamins in addition to high level B1?
Basically any suggestions/advice on how to get started safely will be gratefully received.
Thanks in advance to anyone who takes time to respond.