neurological examination

[Lucal]

Had a checkup by my neurologist, he found that since September of last year there have been no deteriorations. he advised me not to resume pramipexole and continue doing what I am doing. Both exercise and B1. For the next appointment he said see you again in a year. useless before.his exact words were, in 35 years of parkinsons diagnosis, if I had it I would choose your version ...

[ddmagee1]

Good news! How I wish exercise and B1 would do that for me!

[Gioc in reply to ddmagee1]

Ddmagee I read your history of life, you have all my respect, friendship and admiration, Gio

[Hidden]

I recently posted about my visit with my neurologist. The previous appointment I had him do a pull test. My wife took video. At that test I took two steps back. This time I took one step back. He must have been surprised because he repeated it twice. I posted each pull test in the group. My neurologist now expressed interest learning more about Thiamine hcl. Keep the faith and change your doctor's closed mind.

[mannp in reply to Hidden]

That is really exciting news. Now to get more doctors onboard. Congratulations Roy

[Cjbro2000 in reply to Hidden]

@Lucal @RoyProp Good news! 👍 It’s hard to argue with success.

[ladyaudree in reply to Hidden]

God bless you Roy for your good work in spreading the word that there may be a way to get some help. No miracle (yet) for me on the B1 but I have benefited from information I found on the HCl Facebook page and this website.

[jimcaster]

Congratulations! Keep doing what you are doing!

[Fed1000]

Very happy for you Lucal, all this is a great stimulus for us all.

[Enidah]

Bravo! That is very encouraging.

[nellie58]

That is fabulous! Congratulations!

[PEB69]

Congratulations Lucal. This is great news for you and your family!

[Sudhap]

Well done

[Gioc]

I hope the dark days of PD are over for you as they are for me. I am happy for you. Gio

[Despe]

Way to go, Lucal!

[M1tz1]

Wonderful news, Lucal. You're doing well. 🙂

[Toogood]

Great news for you...

[Jennyjenny2]

We’re so happy for you! Congratulations! Very encouraging for us all too.

[Berylhorsey1]

Uplifting. I am on simenet and ragasaline but the B1 has made the most difference. Long may that last. My neurologist says I am still in the honeymoon period and I have been diagnosed for 7 years.

[mannp in reply to Berylhorsey1]

I’ve heard the honeymoon period for PD is 5 years.

[MarionP in reply to mannp]

Honeymoon? Can you say more on that please?

[mannp in reply to MarionP]

The first five years are considered to be more mild. After the honeymoon period things can go downhill faster. We are proving that theory wrong with taking the b1 Thiamine hcl.

[Berylhorsey1 in reply to MarionP]

It’s the period when your symptoms are controlled and not too bad

[mgregor6 in reply to MarionP]

Ya, who wants a honeymoon? I want a divorce court...

[Berylhorsey1 in reply to mannp]

Then I am doing well. I am sure it’s the combination of the nhs meds and the B1

[campos1004]

god bless you, i hope that my years of being healthy helps? still exercise every day try to eat well .

[Springfield78]

Wonderful news! Thanks for sharing!

[ladyaudree]

What wonderful news. What is your story? How long have you been on the B1?

[DianeF in reply to ladyaudree]

Diagnosed 4 years ago at age 58 after a knee replacement. I believe the anesthesia and anti nausea meds exacerbated PD which may have showed up later. No symptoms prior to surgery, but definitely within days post surgery. Tremors stopped after I stopped post surgery meds but stiffness, lack of arm swing, exhaustion , eyesight issues , loss of ability to smell and right sided weakness didn’t leave. I started on Azilect for the first year, added Amadatine the six months later and C/D ER 25/100mg shortly there after. All were helpful but the Thiamine HCL has upped my energy level and cleared my fogginess as well as helped my movement .

[Casey953 in reply to DianeF]

Has B1 also helped your eyesight issues?

[DianeF in reply to Casey953]

That’s one area that has not improved!

[DianeF]

I recently went to Mayo Clinic for a physical which included an appointment with a top neurologist. He specializes in Parkinson’s and is the author of several text books on it. He said, “If I didn’t know you were on medication, I wouldn’t know you had Parkinson’s. Your neurological exam is normal.” I fully credit Thiamine HCL and exercise. For the first time in the 4 years since diagnosis, I feel like my old self. I’ve been taking Thiamine since last fall.

[MarionP in reply to DianeF]

Any response from him about use of HDT?

[DianeF in reply to MarionP]

No, he just said the single best thing to do is keep moving and whatever else is helpful.

[Goldencbc in reply to DianeF]

Diane, can I ask for your dose of B1? Thanks, Carol

[DianeF in reply to Goldencbc]

About 3 grams

[Gioc in reply to DianeF]

I am happy for you Diane , Dr. C will be very happy to read it, Thanks

[jimcaster in reply to DianeF]

Did you see Dr. J. Eric Ahlskog? That's who diagnosed me last May. I am still not on any medication and probably won't follow up with him or any other neurologist unless I feel the need for medication...or, better yet, when they find something which slows or stops the progression to a greater degree than what I'm already doing, which includes HDT and exercise as cornerstones. 😊

[DianeF in reply to jimcaster]

Yes, that was him.

[MarionP in reply to DianeF]

Can I ask whom did you see? (I get my neurology from a Mayo NP in that department)

[jimcaster in reply to MarionP]

See above. J. Eric Ahlskog...

[Kpapa in reply to DianeF]

How much vitamin B 1 do you take

[DianeF in reply to Kpapa]

Around 3 grams once a day. I tried splitting the dose to twice a day but found if I took it later than breakfast time I had trouble sleeping.

[ConnieD in reply to DianeF]

Hi Diane such good news! How much HDT are you on and may I ask what type of exercise you do? Thank you!!😊

[DianeF in reply to ConnieD]

Around 3 g once daily. I fast walk for 1-2 miles at the gym, do a cardio machine for 20 min.,do some light weights and about 20 minutes of stretching. I was going 5 days a week for 2-3 hours but tore my hamstring about 1.5 years ago so I was out of commission for 9 months . I go to the gym 3-4 days a week now but am cautious. I also have 2 knee replacements and a 35+ year history of back issues so I’m selective in what I do.

[ConnieD in reply to DianeF]

Thanks Diane!! Sounds like a very good workout routine!! Connie 😊

[Hidden in reply to DianeF]

Hi DianeF. How do you know that B1 is the reason and not fast walking, which is the protocol that John Pepper uses?

[DianeF in reply to Hidden]

Because I have been fast walking since diagnoses for 4 years (with some time off last year for a torn hamstring ).

[kalyan48]

congrats - by the way do you practice QIGONG -heard HOWARD SHIFFKE'S qigong protocol- recipe for recovery -is helping many - anybody has any idea

[DianeF in reply to kalyan48]

Not yet but it’s on my list. Thank you!

[kalyan48 in reply to DianeF]

great. pl let us know

[Goldencbc]

This is fantastic news. I am happy for you. It brings hope to all of us.