My first symptom when I think about it was widespread muscle twitching (I think you guys in the US call it Charlie horses for some reason!). This went back all the way to about 2001. Most muscles would have their time at this shuddering. Could be the eyelid, tricep, calf etc. Lived with it for years and years and they discounted ALS which was a great relief. But at some point, I sense this 'morphed' into what would become PD as these fasciculation's are still with me especially now on my affected side. Anyway, I went back to the Benign Fasciculation site the other day (not so benign in my case ultimately!) and remembered this post from a member. I send the link here for you all as I think there are lessons to be learnt, irrespective of the fact that he talks about another condition. What struck me about his recovery is the TIME he stresses one needs to devote and not to say after 3 weeks 'I felt no change'. I read this time and time again from those that claim a cure from a neurological disease: quiet, sustained adherence which is very hard for most of us. Who can claim honestly that not one piece of gluten hasn't passed their lips in a year? The coeliacs undoubtedly, but for many of us, abjuring wheat, dairy and sugar religiously over a serious span of time is extremely hard I think. Buy do read this guys story if you think that it might be of any benefit. Best wishes.
Good advice in 'curing' neurological dise... - Cure Parkinson's
Good advice in 'curing' neurological diseases
I haven't yet read the story of which you have given the link, but the people who use to sell their secret of getting rid of a disease often happens to be a fraud.
Hi Jeeves. I too am a twitcher, and in the early days spent untold hours on the BFS site praying it wasn't ALS! Unlike you, I started with left sided arm tremor which still twitches like crazy starting from under armpit, shoulder blade all down arm. I could sit and just watch the muscles fibers twitching irregularly but constantly. I now have on right side too a little. Diagnosed with PD last year. Have read the article some time ago and briefly tried gluten free but I was useless at it. It is something I'd like to try again. The article has quite a specific plan to follow. Thanks for sharing again. Good luck!
I have bfs in calves and have had for longer than diagnosed with pd, its not a problem and have got used to it but suspect a deficiency in some vitamin or mineral. Neurologist and doctor not interested in it and say not linked to pd but seems odd to have 2 unusual neuro problems at same time and yet they are not linked? inconvenience of trying gluten free outweighs discomfort of twitches but if it had an effect on PD would think differently
I think the point of the article is that there's a way out of BFS and I suspect also PD but it's an extremely long, lonely road and not for the faint hearted. I could cure my PD and here's how: salads, water, fruit and nuts,intermittent fasting, exercise every day, meditate for an hour every day, apply myself to a new hobby that requires total concentration to build neural pathways, sit under my red led light hat 30 mins every day etc etc.
Am I going to do it? Probably not as I cannot stop myself eating tasty food and the idea of playing the piano for 2 hours daily leaves me a bit cold. So am I saying that I don't have the backbone to cure myself? Possibly, which puts me in a strange position. He has the answer but can't be bothered to follow it through. Maybe I'm not sick enough yet?!
Bfs has been known to go away by itself , i guess if stress, deficiency , whatever goes away. Apparently trainee doctors are prone to it from stress and crazy work hours. How long do you think you would take to cure your pd? if you were cured completely I guess you could stop the regime. I guess logically if your theory were correct it would be easier to cure it sooner rather than later when more degeneration to reverse, so sooner you start the shorter the regime until goal acheived. I do regular exercise, a bit of piano, a bit of french, intermittent fasting, (2 days a week) a bunch of vitamins (fairly haphazardly), no meds yet. Seems to be helping hold it at bay and maybe slightly improved some things. Early days though so not getting too excited! Your red light hat post on here comes up fifth entry when google "red light parkinsons"!!
Rock on! Interesting how many protocols that I perceive as worthy you already pursue. If you haven’t already done so, type Chris Lacey Parkinsons into Google and read about his crazy journey🙂
Will do,thanks.
His jeeves19
I haven't touched sugar or wheat for six months.
Feel better and got to a healthy BMI.
It's difficult bot possible.
Rai
Hi Rai. Interesting. Does this mean sweetners and things like honey have been denied as well?
Yes.
And not having it removes physical cravings for sugar and flour.
Rai. What about fruit ?
Thanks for the information on twitching. I didn't know there was a name for it. I have had it for40 years. Is there a connection with PD?
certainly the case with me I'd say
Interesting. I am 11 days gluten and dairy free. Gave up coffee a while ago, but still drink green tea occasionally. I haven't given up sugar... yet. It's too soon to notice any change, but I'm planning on trying this for the foreseeable future.
Charlies Horse as I knew it in the UK refered to cramp of the calf muscles mostly for the elderly, so I Googled it, to my surprise the expression originated in America and Baseball, just a piece of useless information to add to the puzzle.
Vitamin D and Neurological Diseases
Time for another Change
a friend in need
Do you use any devices or apps to monitor your Parkinson's - or would you be interested to try some out?
