So I started on 4g of B1 hci 5 days ago. 2g 2x a day. It seems my symptoms are worse. I’m female 5’8” 155 pounds, very mild PD, mainly right hand tremor. It seems I’m tremors g more and having foot weakness. I take 50/200 C/L er twice daily. Should I stop the B1 for 5 days then cut down to 2g per day?
Need advise on B1 dosage: So I started on... - Cure Parkinson's
Need advise on B1 dosage
Written by
1953bullard
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40 Replies
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That is correct. It is until you can discover if or not to blame B1.
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Did Dr. Constantini recommend 4 grams per day? I emailed him and he only recommended 3 grams per day for me. I was just diagnosed, have very mild symptoms and am a 198 pound male. Four grams seems a lot for you.
No I haven’t emailed him. I probably should do that.
I have emailed Dr Constantino. . No reply so far...
What is his email?
Yes he recommended 3 grams a day for me I am 5'6" 135 pounds
he told me to try it for 10 days and than get back to him
2 grams a day 5'4" 55kg
How much is 3 grams
A mg is one thousandth of a gram so you need 30 tablets of 100mg to make 3 gram. 6 tablet of 500mg to make 3 gram.
How are you doing on B1 ?
Email Dr Constantini. Give him as much info as possible. He will give you recommendations.
I'm curious about when to stop taking Sinemet when starting the 2-4 g/day thiamine regimen. I only take (2) 25/100 Sinemets/day, and sometimes that seems too much. I'm interested in the exercise and MAOb inhibitor (Selegiline) to slow my minor symptoms.
It's sort of a hybrid approach as per John Pepper and Dr. Constantini. I'm first getting my blood test for B1, and then talking with my neurologist.
Be extra careful in titrating down Sinemet.
Neurologists adjusts meds by big leaps.
Pls.read ONCE UPON A PILL by Janice Hadlock. Her article csn be downloaded online for free. Long read but loaded with experiences of pts. related to not being careful in adjusting meds. I think her recommendation the 10% rule. 10 % every 10 weeks increase or decrease.
Why would you stop taking sinemet? It works better in combo with the B1 protocol
Concur
in reply to 1953bullard
Yes! Works better.
in reply to
Hi Roy, what brand are you using?
in reply to
Vitacost
in reply to sandog
sandog,
Since you plan to have a thiamine blood test, it is worth mentioning that Dr. Costantini has found that in his experience at his office in Italy that his patients have generally shown thiamine levels that are in range and once started on HDT, those same tests are off the charts.
Art
You should definitely email dr Constantini. The dose can be different for everyone and may not be as straight forward as following what other people are taking. If you google translate your email into Italian the response is quite quick. It’s not hard to do and much better than guess work. You will find the right dose quicker with good and very experienced advice. There is no need to try and work it out on your own. What is right for others might not be right for you.
Could you kindly tell me how to Google translate my email into italian? I can't seem to figure it out. Many thanks.
in reply to wolfie43
Enter translate in google search and click. Enter text and select language then click
There’s also a google translate APp you can download. There is a button down the bottom in both that will copy the translated text for you to paste in your email.
dont see the bottom button.at the bottomthere is home, saved and settings
I am sure someone posted his email already, but if someone would be so kind as to do it again, I would appreciate it. I want to write him, too, for suggestions and dosing and will ask one of my docs to contact him as well. (I think in the interview that was suggested, so that the word gets around and so our PD docs know what we are doing and to keep an eye out for possible issues.
in reply to Angela
In my profile
carapetata@libero.it
yeap
After hearing the interview of the MD in Italy by Robert Rogers at Parkinson's Recovery a week or so ago, I'm very interested in this topic. My tremors and neuropathy are worsening by the day, which is quite scary, and ergo I am open and willing to try new approaches (many of which I have tried over the last 15 years).
Hi this is serious I have never posted this reply or posted anything on this question don’t know what’s happened
Is it a technical problem ??
Did you write to Dr C? He will tell you. I believe there is a scale according to your weight.Then it get adjusted if its not right.
Concur
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