Ten days ago, I got COVID, with mild symptoms. At the time, I had started B1 , still ramping up the dose, with quite some success. In particular I had observed with great surprise and satisfaction how the tremor in my left hand had improved . It was mild on day 1 with COVID symptoms.- so was my usual rigidity and I was just at 1200 mg of B1. I do remember that 2 or 3 days later I thought how great it was that my tremor was weak. I decided to increase the dose to 1500 mg. Two days later, on day 5 of COVID symptoms, my tremor and rigidity worsened, it was back to what it was before it had improved with B1. I am trying to figure out what to do. As I had stopped exercising I restarted with energy on day 7, thinking this too could be the cause of my tremor worsening. But I am a bit nervous about the B1 and wanted to ask if you have some experience to share. I am trying to go back to work so this is really important for me.
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enjoy2013
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In my experience the tremor is not controlled by the b1, but only reduced. Tremor is regulated by Ldopa and its assimilation. I too have had Covid and like the flu it has always increased my tremor, even by a lot, then always returned to normal. In these cases, a good protein-free diet helps me with a little magnesium carbonate in the evening for a lazy intestine and everything else.
In my experience I agree, tremor IS controlled by LDopa. Dr C advised me that B1 improved other symptoms, not tremors. But hey, if it works great. I find that CR works better for me with protein (timing of course) than IR. since CR takes longer to take effect, as PB quoted, I eat when I dose with CR. Works for me.
HWP and both had covid twice, before vax available and then omicrom. Both times he had much worse fatigue for about six weeks. Second time he had more muscle stiffness for a few months, slightly increased C/L, titrating back to orginal dose. MD said very typical, our Covid was very mild, slight fever one day, I had more of a lingering cough than him. I also read this can happen with a Flu etc. Interestingly we had our antibodies test, MD said for our test anything over 10 was good. I was 37 he was 443! Crazy difference I think he must have put up a stronger immune reaction than he thought.
You are experiencing overdose symptoms in that, if you were seeing some improvements at 1,200mg, the rule is to stay there. When you increased to 1,500mg symptoms worsened. Take a short break. One week should do it, and restart back where you saw progress. Have you got my book? “Parkinsons and the B1 Therapy”. Available on Amazon. Everything about the therapy is clearly explained. It should answer all your questions and many you hadn’t thought of asking!hyperurl.co/B1Therapy
I plan to get your book as soon as I get enough in my amazon cart to get free shipping. In the past my husband (he has Parkinson's) and I looked into this and bought bulk B1 but were not certain how to proceed. He is presently doing well with only taking whole Mucuna Puriens Seed Powder along with Restore Gold and many other supplements. Can you tell me what improvements a Parkinson's patient might see as a result of high dose B1?
It is very frustrating not being able to have a neurologist that will work with you. We recently went to a new neurologist because Dave seemed to be getting worse and were hoping to find a doctor to work with us. But he hadn't even heard of Mucuna Puriens. It was a waste of time except he verified the Parkinson's. When we got home we decided to up Dave's dosage of the Mucuna and it made a big improvement on his Parkinson's symptoms.
I hate playing doctor as I feel totally responsible so this blog has been a lot of encouragement for me. He has never taken any of the Parkinson's recommended drugs.
This is taken from the book's appendices and comprises a list of improvements people have had through the B1 therapy. I think it might answer your questions!
Symptom improvements when using B1
Members of the Parkinson’s forum, ‘Cure Parkinson’s’ on healthunlocked.com, who were using the B1 therapy, were asked to list any improvements they had noticed. These are some of the symptom improvements mentioned which are gathered under headings.
Non-motor symptoms
Mood
Anxiety reduced or eliminated
Depression reduced or eliminated
Hope for the future improved
Frustration much reduced
Mood improved and mood swings reduced
Willingness to socialise returned
Hopelessness reversed
Apathy reduced or eliminated
Cognitive ability
Brain fog/focus/clarity improved up to 100%
Concentration improved
Improved memory
A return of lost creativity
Sense of smell
Ability to taste and smell returned
Sleep
Improved sleep both in length and quality
Bodily functions
Improvement in gut problems
Urinary incontinence and urgency down to as low as zero
Constipation significantly reduced or eliminated
Fatigue
Fatigue reduced, energy levels increased, endurance improved
Ability to do things after work instead of going home and having to go to bed
Quicker recovery from hard workouts and aerobic exercise
Pain
Pain in all areas, neck, back, arms, legs, feet etc reduced or eliminated
Motor symptoms
Gait
Gait improved, arm swing returned and shuffling reduced
Ability to do without a walker or cane/walking stick
Walking speed increased with stability and ability to go greater distances
Strength in legs improved
Dragging of feet and legs reduced
Going from not being able to walk, to being able to walk.
Stooped posture improved
Postural instability
Balance and stability much improved
Push test improvements to a quicker balance response
No longer need to grab onto things to maintain balance
Hands
Handwriting/typing/mouse usage increased in speed
Using hands to do things not previously possible
Easier to snap fingers once more
Clapping possible again
Hand strength improved
Movement in general
Bradykinesia/slow motion reduced or eliminated
Movements more fluid
Easier turning in bed
Getting in and out of bed is easier
Able to rise from a seated position unassisted and easily
Able to use stairs normally again
Freezing reduced or eliminated
Flexibility improved
Improved co-ordination
Rigidity
Reduced stiffness
Smiling right up to the eyes again
Masked face normalised
Ability to exercise with greater ease
Dystonia reduced or eliminated
Toe curling reduced
Tremor
Tremor of hands, arms, legs, fingers, toes, feet, head, mouth and jaw reduced to as low as zero.
Twitching reduced or eliminated.
Dyskinesia reduced as low as zero
Voice and swallowing
Improved voice volume, projection, and clarity
Improved swallowing ability and confidence
Drooling reduced or eliminated
Other
Hallucinations reduced or eliminated
Muscle cramps reduced
General
Significant slowing or halting of disease progression
On time increased, off time decreased.
Improvement to a state better than when originally diagnosed.
Being able to continue working instead of being forced to retire.
Reduction in inflammation
A general feeling of well being
Reduced dosage of Parkinson’s medication
Feeling as though you now have a future to look forward to rather than declining health and abilities.
An ability to sometimes forget that you have Parkinson’s
The section was formatted under headings and subheadings which disappeared when I pressed 'reply'. It doesn't make so much sense now! Hopefully you will get the idea!
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Mild PD and B1
Levodopa Induced Dystonia
Too much C/L
Sore feet
B1 experience so far!
