B1, Voice, and Tremor Observation - Cure Parkinson's

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B1, Voice, and Tremor Observation

Auro1 profile image
18 Replies

Lately I have been alternating off and on days for HDT thiamine. One day thiamine and another day not.

What I've noticed is when I take b1 my pronouciation , later in the day, is more often slurred but I don't get tremors. On the day off I do get slight tremors but my speaking is generally ok.

I wonder if anyone else noticed that also. I don't see how tremor and voice is inversely correlated. Maybe not.

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Auro1
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18 Replies
rescuema profile image
rescuema

Interesting. What I'd be curious to see is that when you notice the slurred speech with B1, try taking a sublingual b12 and see if the symptom goes away. I'm wondering if you're running deficient with methyl donors when that happens and slurred speech is one of the symptoms of b12 deficiency.

Auro1 profile image
Auro1 in reply torescuema

I stopped taking B12 a few months ago. I'll restart.

Smittybear7 profile image
Smittybear7 in reply torescuema

Tremors how much b1 till they went away?

aspergerian13 profile image
aspergerian13

Excellently stated. An important focus meriting attention, scrutiny.

wifeofparky profile image
wifeofparky

A B complex supplement may be in order since the B vitamins work together.

Auro1 profile image
Auro1 in reply towifeofparky

Good advice

Dap1948 profile image
Dap1948

I am confused by your post. I don’t consider the B1 as having an instant effect, but rather see it as raising levels over time. I only take B1 every other day because a very low dose suits me, and I notice no difference between B1 days and non-B1 days. After all, those who take their thiamine by injection only have their dose twice a week.

Auro1 profile image
Auro1 in reply toDap1948

I agree. I've been taking it for 1.5 years now. I've reduced several times since starting. I'm now at 600mg. It has helped a lot.

Maybe I'm at some sort of inflection point. I noticed the same reaction when I stopped b1 for a few days back in September. I thought it was my imagination. I felt I may have to reduce it again so I began thinking alternating days.

I've been concerned about my voice for a while. It was one of my first symptoms and tremor followed. My wife says it's ok but I'm conscious about it. It may be unique to me as I used to stutter as a boy. But I out grew that. But the stutter seems to be returning also but probably not PD related like the slurring.

Whether it is b1 or something else I notice the voice/tremor relationship. Which I thought was weird.

Boyce3600 profile image
Boyce3600 in reply toAuro1

Are you saying you take 600 mg B1 orally everyday?

Auro1 profile image
Auro1 in reply toBoyce3600

Yes. Until the last 2 weeks where it has been every other day.

KERRINGTON profile image
KERRINGTON in reply toDap1948

Hi...B1 has an instant affect on me. I am super sensitive towards it. This is going into my 3rd yr...began with 4 grams, down to 500-750 mg, still can't get to the magic dose, but it makes me feel 70 % better. I particularly noted that it helps when extreme tension builds up in my right shoulder, balance, and helps stabilize walking. Take too much & its a disaster, I'm set back for a few days, and then everything gets worse.

Auro1 profile image
Auro1 in reply toKERRINGTON

Those seem to be the same symptoms that it helps for me also.

I find adjustments is ongoing.

Smittybear7 profile image
Smittybear7 in reply toDap1948

Still confused about b1,Sinemet and many supplements.I have been on supplements since 2018 under the direction of a functional medicine dr/pharmacist I have been on Sinemet and baclofen for 1 year.I have read your book but need guidance. Functional medicine dr/pharmacist muscle tested me and said that I should take 500 mg b1 twice a day. Prior to starting the Sinemet wasn't lasting 8 hours and I had some of shrugs, lip quiver, tremors sometimes increase. Those side effects occur 21/2 hours after c/l,very in frequency and intensity for 2hrs then disappear until 21/2 hrs after next Sinemet. Stress exacerbates. Some days I have very little side effects. I started 500 once a day 3 weeks ago. No change. Should I increase to twice a day or increase c/l. Your help will be appreciated. I'm also taking a b complex as recommended by functional medicine dr/pharmacist. I see movement specialist this week. She pushes medication.

Dap1948 profile image
Dap1948 in reply toSmittybear7

I think a muscle test would only give you a dosage of B1 which corrected a deficiency. I don’t think it would give you a dosage for this high dose therapy. Firstly I would recommend that you gave 500mg a chance. We say 4-6 weeks at each level. Then I would move up to 1000mg/day if you’ve seen no symptom improvement. Are you a member of my Facebook group? Lots of help and support there…

facebook.com/groups/parkins...

alaynedellow profile image
alaynedellow

My dose is low 200 mg 5 days a week with weekends off. By monday my index finger is being all pointy so i'm reminded its time to start. I find 5 on 2 off gd as keeps levels consistent. What i mean is since doing on/off i haven' t had to withdraw at all as B1 building up.

Auro1 profile image
Auro1

I took rescuema and wifeofparky advice and added B12 and b complex to my day yesterday with the B1. It was a good day. Voice was good and no tremor. Time will tell if it is the right solution.

JayPwP profile image
JayPwP in reply toAuro1

Any update? Did you take B12 and separate B complex?

Auro1 profile image
Auro1 in reply toJayPwP

Yes. It seems to have worked. I rarely get these issues now.

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