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33mark profile image
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I’ve been diagnosed with chronic pancreatitis and I don’t know what the future will be like

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33mark
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3 Replies
JunoBug7 profile image
JunoBug7

Hey Mark,

I know how scary it is being diagnosed with chronic pancreatitis. I got diagnosed in February 2024 and it’s still unreal to me. Things that have helped me immensely are nerve blocks. Depending on what caused your chronic pancreatitis, things could look very different. I asked my doctor last month how the rest of life would look like. He said that usually people have less pain the more the disease progresses as the nerves become more and more damaged. The pancreas can also become calcified and develop stones that can become stuck. I know this sounds terrible, but there is a bunch of research being done so hopefully we can have more than Zenpep or Creon. Everything is going to be okay though. You’re not alone :)

Beekepper profile image
Beekepper

Hi Mark,

Mate.... I got the CP diagnosis also. I had EPI and thats how they found out. How did you get diagnosed?

33mark profile image
33mark in reply toBeekepper

had a lot of gut pain. Had a few stays in the hospital and pain kept coming back lipase was always over 1000. One of the many scans showed it up.

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