i have crps in my left arm,now i cant bend either of my thumbs myself,any one else had this? or in any of your fingers?

[carlysnan]

my doctor has told me that the crps is effecting my right hand now, i didnt know that crps could effect the ability to bend fingers thumbs, i just wondered if there is any one else that this has happened to?

[Hidden]

what is this abbreviation?

[missrat]

Chronic Regional Pain Symdrome

[Treacs]

Hi, good to see somebody else on here with CRPS! I have it in my left leg, and i now have great trouble bending my toes. According to my hospital consultant, once you have CRPS it can go anywhere else in the body. I've been told to avoid any surgery, except in a life or death situation, and to try not to injure myself in any trivial way, such as a scratch or graze, as it can cause a spread! There's a lot more to CRPS than meets the eye. Take care.

[carlysnan]

yes there is i agree. so good to being able to talk to some one else with crps. yes been told now that it has spread to my right hand which is a real bummer! im not able to work no more,giving up 2 jobs that i loved. crps has effected all areas in my life,marriage,work,driving and ability to do alot of things we all take for granted and that is not even mentioning the pain that goes with it as you well know. my consultant has said the same thing about surgery-i was ment to have my elbow operated on but know they wont touch me. i am starting the pain management program at the min, dont know if it will help in any way but willing to give it a try. have you done it yet? are you still able to work? sorry a big winge there and now questions to go with it,just good to be able to talk to you, tina

[pollyweb in reply to carlysnan]

pollyweb

I've had CRPS for 8 years now i've taken every pill and i'm taking over 30 pills and morphine based 20 mg it started with going for an x ray in my left wrist showing a fine line brake to mr going bk next day to get a chark on to seeing a surgeon telling me that the x ray was wrong to having surgery on my left wrist being operated on 3 times and getting carpal tunnel my surgeon turned round and said he was sorry that my arm was worse than ever but it wasn't his fault and it wasn't my fault either still to this day i still see my pain management psychologist mental health plus i do were a hand brace still i have to get my hair washed by my daughter help get dressed i never leave my home only when i see my gp or need to go to hospital i just had opp on my eye with skin cancer they had to restore my upper and lower eyelid i have CRPS grade 1 i have depression anxiety panic attacks arthritis etc

[Webean in reply to pollyweb]

I have the same. However, mine started in my L wrist/arm after major surgery of the damaged nerves, torn tendons, ligaments, ulnar shortening of arm...as well as needing a knee replacement.

I go to mayo clinic, tried all nerve blocks, allergic to all SSRI's & anti seizure medications..etc. Mines in my entire left side of body at 33, as I have 2 little kids and divorced...so alone.

We can do this though! (So, I say...today) this is hard, the lack of knowledge of the disease itself is frustrating and pain...doesn't have words.

Somehow, together...we can find a way to adapt?!!

Yes my fingers are becoming fixtuated as well and I do not have full range of motion anymore. That's another effect of "this"

[Hidden]

My MP is going to ask parliament to debate our situation/condition after the Easter break, on his own he is unlikely to succeed so if you want the government/health dept to do something to prevent others going though what you have please e-mail your MP today.

Tell them the name of this condition. That it is the worlds most painful incurable one and as much of your story as you are comfortable with, at the very least tell them how long and how many doctors before you were diagnosed. That 95% of the NHS have never heard of this condition but according to figures in a paper published by the Royal College of Physicians last May there maybe 480,000 sufferers on the UK and less than 20,000 have been diagnosed

Ask them to read these links and spare 5 mins to watch the video.

rsdhope.org/crps-symptoms.html

rsdhope.org/mcgill-pain-ind...

youtube.com/watch?v=MviVcjW...(Not working as expected?)

Tell them that Iain Stewart is going to call for a debate on this after Easter and ask, beg , plead whatever you feel is appropriate that they contact him ASAP to offer their support in anyway they can.

Please don’t think I’ll do it later do it right now.

Kevin

[pollyweb]

pollyweb

I've had CRPS for 8 years now i've taken every pill and i'm taking over 30 pills and morphine based 20 mg it started with going for an x ray in my left wrist showing a fine line brake to mr going bk next day to get a chark on to seeing a surgeon telling me that the x ray was wrong to having surgery on my left wrist being operated on 3 times and getting carpal tunnel my surgeon turned round and said he was sorry that my arm was worse than ever but it wasn't his fault and it wasn't my fault either still to this day i still see my pain management psychologist mental health plus i do were a hand brace still i have to get my hair washed by my daughter help get dressed i never leave my home only when i see my gp or need to go to hospital i just had opp on my eye with skin cancer they had to restore my upper and lower eyelid i have CRPS grade 1 i have depression anxiety panic attacks arthritis etc

[pollyweb]

pollyweb

I've had CRPS for 8 years now i've taken every pill and i'm taking over 30 pills and morphine based 20 mg it started with going for an x ray in my left wrist showing a fine line brake to mr going bk next day to get a chark on to seeing a surgeon telling me that the x ray was wrong to having surgery on my left wrist being operated on 3 times and getting carpal tunnel my surgeon turned round and said he was sorry that my arm was worse than ever but it wasn't his fault and it wasn't my fault either still to this day i still see my pain management psychologist mental health plus i do were a hand brace still i have to get my hair washed by my daughter help get dressed i never leave my home only when i see my gp or need to go to hospital i just had opp on my eye with skin cancer they had to restore my upper and lower eyelid i have CRPS grade 1 i have depression anxiety panic attacks arthritis etc

[Grottisue]

Please, what is crps?

[Hidden]

Yes sadly my hand was RSD little finger completely stuck out after many ops and constant physio had to have it amputated. Work work work to try to keep hand and fingers mobile very important,it has now travelled down leg,so painful just wish it was different, You will need paitience with a capital P.

[Davek723]

Hi there , I have CRPS , full body. I have experienced this in hands feet hips knees etc etc locking joints moving out of position joints and stupid pain levels. Usually this happens due to whats called flair ups. The trick is to live differently and limit these as much as you can.

Finding triggers for flair ups is a good place to begin. It means being super aware of whats been going on for weeks prior to flair up. So things like what has been going on physically whats happened to affect you mentally , so stress and anxiety, fear ,Dred, etc . It's very difficult to find triggers but once you do it's about dealing with these things one by one. For me stress is a huge trigger as is over doing it. Also once you realise you are having a flair up its important to realise and accept you know what it is, it's your condition, if you have thoughts of despair oh no type feelings etc for some reason it makes flair ups last way longer. I've been on what I call a 20 year journey, took me 10 of these to get my head around CRPS.

Acceptance regardless of how difficult was the most important thing, then making changes in your life so you are more in control of your condition rather than it being in control of you.

If you need to discuss further please get in touch.

Definitely not alone.

Cheers dave.