CRPS and the weather?

Hi all

I have a list of medical conditions, like we all do! One of them is CRPS in my left (possibly right too) ankle.

I think I have the cold type of CRPS, as my foot is normally freezing and blue.

Anyway, I am really struggling with the pain & swelling at the moment and it's definitely down to the heat. I can't get it in a comfy position & pain meds etc aren't touching it.

I just wondered if anyone has any tips to help this. I can't put anything on it/near it as it is so painful. I am going on my first holiday abroad in 11 years next month & I desperately want to be able to enjoy it.

Thanks for listening, in advance.

Jayne x

7 Replies

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  • I'm afraid I don't have any tips but I too am struggling with the same problem and have moved into our first house so the stress is also adding to this problem. I know I should be happy but the pain is so bad my moods are awful and I can't do anything again. I guess my only advice is to keep drinking plenty as it's easy to dehydrate as for me I sweat a lot due to my CRPS and swell so I easily become dehydrated and exceed the normal recommend water intake a day otherwise I feel even more ill! I guess other than that we have to stay distracted which is easier said than done once pain is so high :( hang in there and if you need to moan to get it off your chest your more than welcome to message me good luck and fingers crossed for your holiday :)

  • Aww I'm sorry you're suffering too Trish.

    Thanks for taking the time to respond and I wish you luck with your move.

    I'm keeping hydrated, as I sweat a lot too. The trouble is that I have a low sodium count & I'm waiting to see a blood specialist to find out why. All gp said was try to cut down on fluids! I'm afraid I just can't do that, especially in this heat lol.

    I hope you have less pain today & thanks again :-)

    Jayne x

  • O nooo that's not good is sodium related to your salt levels? Or are there any suppliments available? That's silly that a doctor would tell someone with CRPS and possible on lots of medication to drink less during a heat wave! Maybe going swimming could help with the pain too as a little movement but would keep temperature down just will suck whilst foot adjusts to the temperature!

  • Yes, they keep dropping every two weeks.

    I have a horrible feeling it may be something called Addison's Disease. I looked up low sodium & that came up. I also have no appetite & have lost 1.5 stone in 3 weeks (not that I mind that bit lol). I also have a couple of strange brown marks on my skin. Both are symptoms of Addison's :-/

    I may try the swimming though, even if it helps a tiny bit.

    Thanks hun x

  • Yes, they keep dropping every two weeks.

    I have a horrible feeling it may be something called Addison's Disease. I looked up low sodium & that came up. I also have no appetite & have lost 1.5 stone in 3 weeks (not that I mind that bit lol). I also have a couple of strange brown marks on my skin. Both are symptoms of Addison's :-/

    I may try the swimming though, even if it helps a tiny bit.

    Thanks hun x

  • I have crps to the left hand side of my body, the heat has been a killer these past few weeks, I have invested in a tower fan which helps keep me cool but I have to keep the air flow off my leg and side as it makes it burn. All I can say is try and keep an ambient temperature maybe luke warm baths may help.

    Before you go away find some horse bandage, it is a kind of cotton wool roll get your leg accustomed to it and then you can use it as a sheild for an ice or heat pack. A surgeon suggested it to me before a tornique procedure and it did help a lot.

    Good luck and keep fighting.

    nutty xx

  • Hi nutty

    Thanks for the tip, I will definitely try that horse bandage :-)

    I hope you have less pain today & enjoy your weekend.

    Jayne x

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