CRPS and the weather?

[jaynief]

Hi all

I have a list of medical conditions, like we all do! One of them is CRPS in my left (possibly right too) ankle.

I think I have the cold type of CRPS, as my foot is normally freezing and blue.

Anyway, I am really struggling with the pain & swelling at the moment and it's definitely down to the heat. I can't get it in a comfy position & pain meds etc aren't touching it.

I just wondered if anyone has any tips to help this. I can't put anything on it/near it as it is so painful. I am going on my first holiday abroad in 11 years next month & I desperately want to be able to enjoy it.

Thanks for listening, in advance.

Jayne x

[Trishmurfin]

I'm afraid I don't have any tips but I too am struggling with the same problem and have moved into our first house so the stress is also adding to this problem. I know I should be happy but the pain is so bad my moods are awful and I can't do anything again. I guess my only advice is to keep drinking plenty as it's easy to dehydrate as for me I sweat a lot due to my CRPS and swell so I easily become dehydrated and exceed the normal recommend water intake a day otherwise I feel even more ill! I guess other than that we have to stay distracted which is easier said than done once pain is so high hang in there and if you need to moan to get it off your chest your more than welcome to message me good luck and fingers crossed for your holiday

[jaynief in reply to Trishmurfin]

Aww I'm sorry you're suffering too Trish.

Thanks for taking the time to respond and I wish you luck with your move.

I'm keeping hydrated, as I sweat a lot too. The trouble is that I have a low sodium count & I'm waiting to see a blood specialist to find out why. All gp said was try to cut down on fluids! I'm afraid I just can't do that, especially in this heat lol.

I hope you have less pain today & thanks again

Jayne x

[Trishmurfin in reply to jaynief]

O nooo that's not good is sodium related to your salt levels? Or are there any suppliments available? That's silly that a doctor would tell someone with CRPS and possible on lots of medication to drink less during a heat wave! Maybe going swimming could help with the pain too as a little movement but would keep temperature down just will suck whilst foot adjusts to the temperature!

[jaynief in reply to Trishmurfin]

Yes, they keep dropping every two weeks.

I have a horrible feeling it may be something called Addison's Disease. I looked up low sodium & that came up. I also have no appetite & have lost 1.5 stone in 3 weeks (not that I mind that bit lol). I also have a couple of strange brown marks on my skin. Both are symptoms of Addison's

I may try the swimming though, even if it helps a tiny bit.

Thanks hun x

[jaynief in reply to Trishmurfin]

Yes, they keep dropping every two weeks.

I have a horrible feeling it may be something called Addison's Disease. I looked up low sodium & that came up. I also have no appetite & have lost 1.5 stone in 3 weeks (not that I mind that bit lol). I also have a couple of strange brown marks on my skin. Both are symptoms of Addison's

I may try the swimming though, even if it helps a tiny bit.

Thanks hun x

[welshnut]

I have crps to the left hand side of my body, the heat has been a killer these past few weeks, I have invested in a tower fan which helps keep me cool but I have to keep the air flow off my leg and side as it makes it burn. All I can say is try and keep an ambient temperature maybe luke warm baths may help.

Before you go away find some horse bandage, it is a kind of cotton wool roll get your leg accustomed to it and then you can use it as a sheild for an ice or heat pack. A surgeon suggested it to me before a tornique procedure and it did help a lot.

Good luck and keep fighting.

nutty xx

[jaynief]

Hi nutty

Thanks for the tip, I will definitely try that horse bandage

I hope you have less pain today & enjoy your weekend.

Jayne x