We had a presentation at work yesterday about neuropathic (nerve) pain. They gave out some leaflets about a website about it :
It seems to be sponsored in some way by Pfizer, one of the big drug companies, and I am in no way promoting them, but I thought the website was worth a look and does have some useful information. I think the graphics describe it well, and might be helpful in explaining to non-pain sufferers what it is. Pain Concern also gets a mention.
I know I intermittently get neuropathic pain. What I hadn't realised was that includes the stabbing sensations in my tongue - it's not my imagination after all! I think my lack of knowledge & understanding meant I played down my pain & wasn't very good at describing it - I always thought pain was the "ouch!" sort but now I know it includes all those other itchy, burny, stabby, etc unpleasant sensations. I realised with a shock how quickly after starting with the common or garden pain the neuropathic pain followed - within weeks, but it didn't get a mention for a couple of years.
The speaker, a hospital consultant, said that he always tells his patients, "I will help your pain to be better but I can't take it away completely". No one has ever said that to me, I came to that conclusion myself. I think the phrase, "this treatment will be palliative only" was used once. I work in health, I should know what that means, but somehow it didn't register at the time. I hope the consultant really does use plain language. Sometimes I think they (and maybe I've done it myself when I'm at work) think they've told a patient something quite obvious, only it isn't obvious to the patient.
I also had a little chuckle to myself when he said it was important for patients not to sit & think about pain - 45 minutes of sitting listening to him going on about it, wrapped up in a heat pack probably wasn't the best bit of self-management. Played "pain drug bingo" and rewarded myself with a chocolate from the tin in the office for every drug he mentioned that I've tried - good job I've steered clear of the opioids or there'd be no sweeties left for everyone else.
Not sure my own language is very clear tonight. I am a bit co-dydramoled. Way-hey!