FND fitness and Pain

[Crystallmatters]

Hi Everyone ,

Been now twelve weeks of going to Body balance / Body shapes , Pilates and Yoga , walking to the sports centre , well it’s amazing or maybe only for a while who knows, between the mindfulness of the classes and the exercise, despite some terrible flare ups , the benefits might be coming ? That big word hope , when you remember, I was stuck, so unfit not wanting to face the world thinking I had nothing to lose , I kept pushing through the pain total madness , FND got worse for a while so did the pain , but now I have some muscle back , I think I must be a nutter , I don’t know why you would want to put your body through what I have , but maybe now I am seeing that excises are very beneficial for me , I guess now I have some fitness while in pain , it helps me pick up my foot when it drops , well do be clear pick the knee up and drive my leg forward. I can go out for walks again and yes I might be in pain but no more than being stuck at home . I have met other pain sufferers in classes and doing Zumba Gold for us older ones , it’s fun and the music helps me.

I have managed to stop taking as much medication as the exercise when I push a little , realises endorphins helping with pain .

I have to keep this going , never say never, I don’t know how long for but years of losing muscle, it’s coming back .

My question to myself is am I currently better off than the bottom of the well I was in with no ladder , the answer is yes. I have hope for the first time . I can sleep better, far from good but better.

I can safely say this has taken every day for around fourteen weeks and yes at least three days at a time with a flare up , out of action until , I go again. I know the abbot burst paddle stimulator has helped me a lot as the pain might have been to much on many occasions, so I am great full for this.

I have been eating more healthy and reduced my sugar .Strictly no alcohol. I can see more clearly how true it is that how we feel, how emotions play a major part in the volume control.

My aid kit of family photos , music , I pad , being around my family is a must .

I still have to admit , when in the bath , I sometimes want to just stay under the water and never come up, I think what did I do to deserve this exhausting life of suffering, I can though recognise the situation and pull on my learning with optimise and Sandra Wiltshire that I am mentally castastrophizing , the brain is looping with childhood abuse and opening the food gates to bad chemical reactions in the brain and basically this causes more pain and worsening conditions, I just need to stop , breathe and recognise the situation. I can the force a laugh and start to tell myself what is going on . Apparently this will take quite a while for me to rewire the brain .

It just shows , one there is hope and two the brain plays a major part in my pain management. I can see how anxiety, depression, concern , worry , opens the flood gates to extra pain volume and feeling crap. So early stages, practicing mindfulness, watching fun , comedy TV helps , music , helps, treating myself to a hot chocolate, walking to shop to get one helps , ok ok not the sugar but hey once in a while .

I have to say it did seem I was flogging a dead horse for quite a while and a slug could go quicker than my progress, but it’s like a long hill, until you start coming down . I know it’s not for many , but I have to say any one part of what I do , does give me a better feel factor, and when in pain , I go what did you expect, but for now in order to find out how true so much is said , it all looks very true .

love to you all , got to check up on my hot bath, having one before it’s to late , xxxx

[deejames]

brilliant to hear. I am like you in driving myself to walk and do yoga every day. Gardening as well. The pain is still here all the time but I am living a life I can take joy in. Reduced pain meds though I think co-codamol will be my forever support that allows me to participate in living a healthy(ish) life

Good for you for making this grand effort. Its worth it is it not ?😀

[Crystallmatters in reply to deejames]

Well done you, such good news to hear you are driving your self and getting something out out , I am finding out like you the pain is no worse for doing things I enjoy , it’s early days as the flare ups are bad , but , I can see as I do a little more , I can do more and like you the pain is still there. But I have got a little piece of my before life back, just very different, I am going to have to pace myself better. I do hope continue your journey as I am going to see how far I can go, one interesting thing is ho w my FND has adapted, I can be well for a while and instead of having a problem in one leg and foot when it is bad the pain it knocks out both legs, it’s crazy how can one moment, I feel good and feel normal and the next my legs go . Anyway onwards and upwards, let’s see what happens, for now , I can see benefits from exercising for me. Thanks for your kind words look forward to an update from you , best of luck