POST STROKE FATIGUE

[greybird1941]

My daughter had a stroke 12 months ago and suffers badly from fatigue She is working but thats all Wonder if there is any research going on or if anyone has a "magic "cure Her energy levels are finite once gone there is no way you can recharge the levels needed for a normal life A bad day and she is exhausted

[OSTEOARTHRITISRA]

Hi sorry to hear ,hope she gets a good recoveryMaybe back to work to quick as well

Fatuige is bad very bad just like pain etc

If it's chronic just like

M,E

It's hard to medicate etc none seem to help

Only tools and tips seem to help a it better

Lots have lower quality of life and give up work as well

And have to go on benefits

Pip

And

Universal credit

Some tools

Pacing little bits not chunks

Sleep sorted and routine

Give yourself 1 to 2 hours to function in the morning

Less stress

Research no sure

I used to be a member of the

M.E Association

You could start there for fatuige tips And join and ask them about

Research etc

Aa reply below

There's lots of

Stoke association and charity's etc they could maybe point in right direction

Looking it up it says it varys upto 6 years for lots

After a stroke

[weathervane]

The chest heart and stroke charity might be of help , also an occupational might be able to give advice. I don’t think there is a miracle cure , but help with managing her life to conserve energy might make a difference, best wishes.

[PainConcernProjects Partner Community Champion Pain Concern]

Hello greybird1941

Sorry to hear your daughter is still struggling with fatigue after a stroke 12 months ago. I wonder if you have reached out to any charities specific to strokes, such as the Stroke Association? stroke.org.uk/

Before I look in to resources we have that may help, please can you tell me if your daughter is also experiencing pain? This will help me locate the best resources we have.

-Pain Concern UK

[cyberbarn]

There is indeed a lot of research into post-stroke fatigue. Have you ever used Google Scholar?

scholar.google.co.uk

There are a lot of research papers there, just put stroke fatigue into the search box.

Has she shared this with her clinicians? There should be someone that will support her. It could be causes by inflammation or similar, but generally it seems that post-stroke fatigue is a physical thing, not a psychological thing, so just pushing through isn't going to help. Does she know about pacing?

And depending on where she works, they maybe have an occupational health officer at work that should be supporting her too.

[Meloncoly]

Her body is trying to heal and recover. She needs to not work or reduce her hours but rest and recover (if possible ). She will have a longer recovery time or more complications if she doesn't listen to her body and rest.