Multiple unexplained pains!: Surely it can't be... - Pain Concern

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Multiple unexplained pains!

Adora12 profile image
7 Replies

Surely it can't be a coincidence that I keep getting pains that don't go away and are unexplained.

I've had daily chest pain since 2020, unexplained (excruciating) atypical facial pain since 2021 and now unexplained throat pain since June 2023. I've had multiple MRIs, cameras, x-rays and no explanation for any of it.

I also have chronic pelvic pain (possibly adenomyosis), unexplained numbness in my hands, pain in one ankle, left hip and generally very sensitive to touch.

Yet no doctor is linking any of this, they are all individually shrugging it off, not knowing what to suggest. I have tried 5 different medications - bad reactions to them all.

Does this sound normal? Should I be insisting someone look into this further?

It's like multiple fire alarms going off but no fires!!

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Adora12 profile image
Adora12
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7 Replies
Scotsman53 profile image
Scotsman53

Google TMS (The Mindbody Syndrome)

Adora12 profile image
Adora12 in reply toScotsman53

It's exactly this! Thanks

Adora12 profile image
Adora12

Thanks, I have, but why haven't the doctors. Seems like they're skirting around the idea. But it would be nice to at least have an explanation.

caringkriket profile image
caringkriket in reply toAdora12

AGREED! Because alot of doctors think it's not a real disease. My dad had polymyalsiarheumatica just meaning many pains all over the place with similar symptoms of rheumatoid arthritis and had really bad pain. Has your doctor ever tried you on prednisone? All of his pain mostly got better but still pain that came and went and they upped his prednisone. It's kinda like a guessing game. I am sorry that you are in pain and I know all to well the challenges. Just please keep trying to find an answer and try to hang in there! Prayers and huggs XOXO

Imagine1 profile image
Imagine1

Hi Adora12,

I have pains all over my body which are unexplained so the doctors tell me. I have been diagnosed with Complex Regional Pain Syndrome, which doctors don't recognise. My pains make sense because I have all the symptoms yet I have to go to a specialist hospital with a 33 week waiting list to be told that i have this condition when I know I already have it. The doctors are wasting my time when something could be done for me. Look this condition up and see if that helps you in getting a diagnosis. Take care and let me know if you have any joy.

bookish profile image
bookish

What are your bloods like? Do you have a result for vit B12 and folate (B9), full blood count, thyroid testing and magnesium? I'd be asking for homocysteine and methylmalonic acid. Best wishes

PainConcernHelpline profile image
PainConcernHelplineModeratorCommunity ChampionPain Concern

Hi Adora12

I am a forum moderator at Pain Concern and have just been reading through your post. i am sorry to read that you are having such a difficult time.

I have included some links to information that I think will be of help to you, including a link to the Self-management Navigator tool that has been designed to help you navigate healthcare appointments.

painconcern.org.uk/the-navi...

painconcern.org.uk/product/...

painconcern.org.uk/manage-y...

painconcern.org.uk/

The last link will take you to Pain Concerns website where you will find lots more useful information

Best wishes

Pain Concern

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