Final warning. Update

[jahel]

Following on from the update, here is why I feel I should stress the importance of assertiveness when dealing with Gps or for that matter specialists, especially if the drs are obsessed with some silly little calumny from previous drs notes.Ok, I'm preaching to the converted, I'm the loser here, even so, non NHS residents may read this.

I think we are in grave danger if we allow the smug complacency of ill educated drs to give us a false sense of security. We have to take responsibility for our health, and that is what HU is here for, it is the message.

In the UK your Gps are paid to ignore you, so there is often no incentive to keep you the patient alive, and no comebacks if they don't.

In those non NHS countries especially the very expensive places like jersey CI the situation is much more dangerous, with pay direct to gp, as the Drs and Dentists are not only not accountable to their customers, but are also just business Partners, and yet hold total power over the customers and with huge prices, for what amounts to symptomatic suppression of serious disease. So non nhs PTS this is for you.

The situation is even more deadly in Jersey as the lack of diagnosis leads to poverty for the customer, especially if there is no or low pension, and with the cost of living being higher in jersey than anywhere else in the world, the result is often less than 1 visit to surgery per month when feeling extremely ill, and no means of getting there even were they to have the money put aside for the electricity bill.

Often we find here the attitude, what's the point? This is 6th time this year I've asked dr to take this cough or pain seriously, but still no investigations, and now leccy bill is ruinous.

The propaganda that comes across, and its everywhere now, Lulls too many of us into a false sense of security. A quick or a slow glance on internet will not yield anything alarming. No signs for the deadly disease which in reality is likely destroying us, but big pharmaceutical won't worry you with such negative red flags, and why would they?

The drs that follow the same attitude are often the biggest hurdle to our longevity, as they all drink from the same trough, but we the customers don't have to drink the cool aid.

I hope and pray that we ALL become better aware of our bodies, and take quicker action.

Don't do what I did, instead learn from others mistakes, and beware of the big bad system!

[jahel]

I arrived at the local hospital at 7pm on monday, after an 8 hrs wait for ambulance. So much for 999, only witnessed deaths from heart attacks attended by drs will allow an ambulance, or a noisy light.Agonising paralysis does not cut it with the 999 service. If the person who takes the call does not believe that the caller is even ill. And ambulance crew have same attitude. 3 hours earlier arrival and a stretcher may have saved the fracture and spinal nerve.

Drs tested legs, abdomen for signs of life. But all dead, no feeling from chest down, no movement, just dreadful pain from now on from chest and back up.

Had tests, then finally mri scan which revealed large shadow on left lung, I noticed also that the 6th vertebra appeared to be missing, which corresponded with the symptoms that I had had for so long.

I was not told anything really, they let the patient work things out in their own time, which i think is kinder too.

I had morphine on monday, then that same evening I had priority flight on tiny plane to Southampton then had 1 session of radiotherapy, and an x ray scan. I think that's when I noticed the lung and spine pictures, it's all a blur, the morphine and inflammation I expect.

I was stuck in a side room until today Saturday until a bed became available, tiny plane back to jersey hospital. The pain is awful, had about 4 hours sleep in 5 days. The beds are incredibly hard, and a hard ridge right where my back and ribs are means I can't avoid the pain, pillows make it worse, but I can't do anything to change things, as any attempts to put pillows under anywhere leaves me stuck, and reaching for the call button, but there's only so much morphine you can take in a day just 5 days in.

It's better here in jersey though, as I have my own torture I mean bed adjuster, but I get very stiff sat up with only a smart phone, and no headboard or support, then agony when I have to face the music and attempt to lay down and try to sleep, hot, then cold all night. Catheter from start, bowels not worked for well over week, when I could barely get to toilet, and had barely eaten for a month. Bowels kaput.

The worst of it was that the contract on phone ended on monday, so no contact with anyone in uk or here, and my will is not written, and have not been able to organise any charities to leave house or contents to, or to collect stuff from house for charity, as my house is uninhabitable I am stuffed.

A ghastly dr just came to inform me that I have no choice but to go in a care home. Government will take everything, probably throw everything away too. Dr has told me I will have to overcome my fear of institutions. This is my worst nightmare.

I will have to try and find a solicitor tomorrow, but first I need to contact charities, as I want them to get to contents of house before the stormtroopers move on it. And I don't even have a telephone now.

I will be assessed for bronchoscopy soon maybe. I guess the hospice don't want me.The care homes here are all LV gulags grave goods robbed, no good causes benefit from any of this, and solitary confinement in pain till death

With no prospect of a consolation of benefit to show for the scrimping and saving on a tiny income. From now on there wont be any income.

Some are suggesting I'm insane, some want me gone from hospital asap, and house and land will be forced onto open market, and the mafia will build a housing estate on it, is the usual case scenario. It costs £1000s a week to nurse a paralytic so that is a very expensive coffin, and the prospect of being buried alive in solitary

Confinement in a gulag grave and forced on poisons by strangers is a fate worse than death.

Wish me luck.

[Schnoodle2017 in reply to jahel]

oh good Lord. This is just terrible! I wish you luck. Are they really saying there’s nothing more they can do? They told you as little as possible it seems.

I wish you luck that things become a bit easier. Sounds like the most stressful time.

[timbowPSP in reply to jahel]

You sound like u are in a right pickle. And I can't help much .....wish I could! You must be in need of warm loving friends, and any touch is healing.

When I was diagnosed with PSP 5 yrs ago and "There is nothing that we can offer you", I decided to avoid all drugs and to rely on my own intuition ..... Targeted exercise, organic Mediterranean diet, specific supplements, and certain therapies. I can't be sure it has worked, but am still here, active and able!

PSP means Please Stay Positive .... and I wish you very well, and also try PSP. Timbow

[Schnoodle2017]

I happen to agree with everything you’ve said here. I agree with a heavy heart. Our NHS with wonderful from its inception. It work great over the 50s, 60s, 70s and 80s. Mind you, chsnge were being made in the 80s that started the decline of our NHS. It’s been getting much worse over the years. Some pockets of health service still work great, in some areas. Most other services tell a different story. GPS have been notorious for didmidding patients concerns over the decades. Our health service is driven by not only money, budgets but it’s in the grip of big pharmaceuticals.

I understand people find drugs invaluable. We don’t know any different as the old ways medicine and healing have been forgotten. We need to bring them back however, it’ll take a leap faith for people to feel comfortable in ditching the pharma meds for say… herbal remedies and any quirky routines to eradicate disease. It’ll take a ton of learning as well.

You are very right. We need to look after ourselves th best we know how so far. Health services (private and state run) are in decline and too reliant on large company pharmaceuticals. A sad state of affairs but, maybe we can change that eventually.

[Tourk]

Medical professionals are human, some good some not so. When profit is added to the equation it becomes rather muddy.There is a lot we can do for ourselves, taking the right vitamins exercise drinking clean water and of course not using vegetable oils to cook with. ( we have been lied to about them being healthy).

Doing the right research about our conditions can also help when talking to doctors. A GP has knowledge of a hudge range of conditions, they aren't always up-to-date with latest developments. So it's important to know how to talk to them.

Also being selective in what vaccines we have, what passes as a covid vaccine is a big hudge NO. Fortunately its being withdraw.

It all comes down again to knowing what's good for us and what's not. Then with consulting with our dr / medical professionals we can make an educated choice.

Living in the UK and are being faced with a huge push for profit based private health care. One that'll leave even middle income people wanting for health care. It's been a long time coming, but over the last 12 years it's been destinated. So many good people have been sacked for standing up for patient care against political policy.

[Konagirl60]

I advocated for myself as I know my body and I knew I had nerve involvement.

I was called aggressive for suggesting what I thought was wrong, for explaining to my pain specialist that she had done her nerve blocks into the wrong area of my pelvis, and for learning about what treatments or surgery I needed.

I’ve realized that most doctors don’t listen to pain patients and they brush us off as having a mental health disorder.

I was diagnosed with ‘cyclothymia’ when in actuality I had a severely pinched nerve in my right buttock !

No doctor where I live (Vancouver ) would help me. I became a victim of poly pharmacy! I needed surgery not pills that tired me out and made me lose cognitive function! My neuralgia was never controlled. I feel it was torture.

[Beater]

I drank the koolaid and I am suffering for it. I have nowhere else to turn. I've tried everything and it just keeps getting worse. The Dr.s have killed me and I am dying a slow and painful death.