CPPD

[SecretlyDisabled7]

Does anyone have or know about CPPD? My rheum. just added it to my issues.

Reading about it, it seems there is no advice.

[cyberbarn]

I take it you mean pseudo gout? I think basically NSAIDs help or other things that help with inflammation.

[SecretlyDisabled7 in reply to cyberbarn]

It doesn't sound like you have experience with this. It isn't exactly the same thing since it is made up of calcium crystals that are sharp and not the uric acid. The crystals cut through the disc and tissue between joints with movement and does permanent injury or scarring. It is not very responsive to anti-inflammatory medications only. I would like to hear more of what others experience with cppd.

[Rkskier]

Do you still have pain from CPPD. I have had this crippling condition.

[SecretlyDisabled7 in reply to Rkskier]

Yes. It is chronic for me and it is a crippling condition, that's for sure. I would like to hear more about your experience. Thank you for responding to me.

[Rkskier]

Triggered by rt. shoulder decompression surgery. Followed by pain in elbow followed by right wrist pain and to the hand. Arm to hand packed in ice every couple of hours. Then began pain in left hand & wrist. In the final analysis - 1 week of 15mg prednisone began to relieve the pain - 8 months and 4 Dr.'s later.

I'm more than happy to share more detail but would prefer to send via email.

[Morganalefaye]

If you’re still interested, and want to discuss, I’ve recently been diagnosed with the condition CPPD as well. I’ve found it almost impossible to find anything very informative about it, but my rheumatologist has recommended Methotrexate.

[Rkskier]

Hopefully you have found a solution. In my situation, the Orthopedic surgeon said it was from my Ulner nerve in my elbow - performed surgery which did not help. Then went to a hand surgeon and after an MRI said he could not help. Went to a Neurologist and after an MRI of my neck - couldn't help. Many months later saw my rheumatologist who has treated this condition previously (who knew) and after 1 week of 15 mg daily the pain subsided. Has not returned in a few years.