Psoriatic arthritis

[Betsy50]

Hi folks hope you are all well. So eventually my advanced physiotherapist referred me to a rheumatologist she is mad at my go cos she thought he had already done it but he kept blocking it saying there is not enough evidence! I've been complaining for years and he just wouldnt listen !! I now have real bad pain and altered sensations on my left wrist and hand and the pain awful. My wrist wrist I'm wait6on an operation for de quervains tenosynovitis it's so hard when you have so much pain to try use your hands. Does anyone on here have this condition? I got an appointment real quick was only referred last Wednesday and got an appointment for this month. Any feedback would be greatly appreciated take care everyone

[timbowPSP]

Hi Betsy, are you anywhere near eastern Slovakia? There are mineral springs at (a place which eludes me right now - near Piest'any?) where they do special mud and soak treatments for Psoriatic, and have done for years. I will find out more details for sure if you are realLy interested. I was in Slovakia for 6 months 20 yrs ago, and also I have PSP! Best TimbowPSP

[Betsy50 in reply to timbowPSP]

Hi timbowpsp thank you for your reply much appreciated. Unfortunately no I'm in scotland. I believe this is going to be my diagnosis how long did it take for you to be diagnosed?

[timbowPSP]

Oh Betsy, my good friends are off camping to Scotland just now. I was all over the islands since age 22, and its like a spiritual home .... bit done for now! Where are you? I ws getting the wobbles 3 yrs ago so went to my GP. He spotted something and referred me for MRI. 3 weeks later and private (instead of 3 month NHS wait) consultant gave me the unbelievable news. I have it all documented, and will send to you. But 3 A4 pages, so bulky and best sent via ur personal email .... please send? TIM

[cyberbarn]

I have just been diagnosed with psoriatic arthritis. All the signs were there so I had figured it out three years ago, but it took them that long to figure it out for themselves.

Like all these conditions everyone is different, and there are different genetics underlying the condition too. Some people progress fast, others it is much slower. how much skin involvement do you have? Some have a lot, some hardly any.

I don't have too much skin involvement in that I am not covered in rashes, and my joint pain is annoying but tolerable. It is the tiredness and difficulty getting going in the morning.

And the stomach pain brought on by the first drug they tired me on! So there is lots of experimentation to find a drug that works for each person.

Good luck with everything!

[Betsy50 in reply to cyberbarn]

Hi cyberbarn thank you for replying much appreciated. I only have tiny spots nothing to shout about but I do have other skin issues and keep breaking out on what like small blisters but the joint pain been going on for years and gradually getting worse. My hand blew up in april went to a&e and they even remarked that this needs looking into as there was just no explanation feel like I'm hitting my head off a brick wall but thankfully the advanced physiotherapist has took it on board. Hope you are well

[dinkic]

I also have this although I like other suspected I had joint problems prior to it being confirmed. Like others I am still trying to find treatment that does not irritate my stomach etc, Glad you have some certainty now. It might sound crazy but although cold weather is not always good for those with bone problems I find the hot humid weather much worse. They are also making advances in treatment I am part of a programme through my specialist where they take fluid from my knee that swells regualrly, and it is used for research. Wish you all the best cos I have multiple pain issues and know that adding to the mix is difficult. Always contact the group find them to be knowledgable and friendly, all the best

[Betsy50 in reply to dinkic]

Hi dinkic thanks for replying much appreciated. Yes I have issues with pain have done for years had back surgery in 1999 and pain still ongoing sciatica etc. The advanced physiotherapist has said next time it swell get a blood test done ASAP which I will have more faith in her than my gp my inflammation markers are showing it. Yes actually the hot weather does affect me more too. Good luck with the research keep me posted please. Take care and thank you

[Linelover15]

Hello BetsyI am 81 and have had psoriasis all my life ( my mother suffered with it).

About 20 years ago it developed into psoriatic arthritis, which was initially kept in check by weekly self injections of methotrexate until that began to affect my liver so had to stop. Now I take sulfasalazine twice daily and it is sort of in check. I’m aware that stress causes psoriasis to break out and because I am main carer for my husband, who has mixed dementia, I’m now experiencing lesions on my face for the first time. Struggling to keep my head above water at the moment. Sorry to sound so negative but I’ve had so many years of this, that it’s become almost overwhelming.

My consultant told me that many people can tolerate methotrexate all their lives and you may be one of those! You just need regular blood tests. Good luck

[Betsy50 in reply to Linelover15]

Hi linelover15 thanks for replying much appreciated. Aw your poor soul it all sounds awful for you cant you get help caring for your husband? Yes it in my family quite bad but I've not got that much to shout about but the advanced physiotherapist asked if it were in the family which it is badly for some of them. It's the hands that are killing me atm and it's starting to affect my driving my lifeline to getting out as mobility not good. I see rheumatologist on the 23rd so I'll keep you posted. You look after yourself and I'm always here for a we chat

[Betsy50 in reply to Linelover15]

Hi linelover15 how are you today ? Well I've been diagnosed with high blood pressure 193/123 put on medication immediately this is all new to me. I hope you are well

[Linelover15 in reply to Betsy50]

The meds will bring that high BP down immediately, so that’s one important thing taken care of. Less to worry about! Thinking about you

Limelover15

[Linelover15]

Thank you Betsy