I don’t know how to write generally to everyone in this site so just chose one of my regular groups which is this. Anyway my brother and his wife found out a few days ago that their son has an illness called Chiari Malformation. When we were told we thought what on Earth is that because we’d never heard of such a thing. Doc explained alittleto his parents but have an appointment with them soon. I feel so sorry for the poor little thing and it’s really worrying. Has anybody ever heard of this or know anybody who has this?
Brain problem : I don’t know how to write... - Pain Concern
Brain problem
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Junny1
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2 Replies
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There's some good information here: nhs.uk/conditions/chiari-ma...
Best wishes to you and your nephew.
It is more common in people that have Ehlers-Danlos syndrome, so you might find people in that community that know more about it.
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