Hello out there. My names Rebecca and I'm 16 years old, and its lovely to meet you. I must admit I'm a bit nervous writing this, as I don't know what people may think, and if any one would understand or help.
I have CRPS down my hole right side, and it effected my walking (so I limb and drag my foot) and I am unable to open my right hand, which as been in a paw/claw shape since 2013, a year after I got CRPS, and Is constantly horrifically painful.
I haven't got much help from doctors and for years I have been bounced around different hospitals and pain management with all Other being the same thing I'v heard a thousand times, like "We cant help you." , "We dont know" , "theres nothing we can do." and the bigest one "You just have to get on with you normal life."
All these thing are easy to say, but they dont acthally help, and I do feel quite isolated and scared by how little they know. I know CRPS inst something you hear every day, but it is out there. and I must admit I'm terrafided because Iv never met some one like me, and I honestly dont know what to do, for at the moment I'm just left in Limbo with the doctors, and I'm Stuggaling so much with try to sleep, as I cant have the covers on my right side as Its too painful, or I just wake up because they pain is so bad. I just dont know what to do, and I could really do with some one to talk too.
So thank you for reading this, and please if you can , please leave a comment, even if its just saying hi , I would love to hear from you. Thank you
P.S: Sorry about the spelling mistakes, I really struggle with my spelling and some times grama because I'm dyslexic.
once again thank you