Bunorephine patches.

[Pagan707]

I have just been swapped from MST to these patches. Day six and I’m struggling. Does anyone have any advice? Or just somone who is on or been on them I know so little about them. Thanks

[Hzhr7]

I have been on them for about 5 years now . Once you and the Dr's get the dose right they are really good. What dose are you on and how often do you change it? I am up to 35 micrograms and find that these keep my pain under control without any of the unpleasant side effects I got with MST . I change my patch every 72hrs . Use a different area each time and they must be on your upper body . Hope this helps. Any questions please just ask xx

[Pagan707 in reply to Hzhr7]

Thanks, I’m on the 35mg patches too. You change yours every three days? My packs say every four days. Do you get constipated with them like the MST and do you use any breakthrough pain relief? Many thanks

Patrick

[DISC]

Ive had these for years now, stick with it, the side effects go.

[Pagan707 in reply to DISC]

Thanks DISC day 9 and things are settling down nicely. Thank you.

[Jade22]

Hi pagan707, I've been using them for years now with a mix of other pain killers, I went up from 5,10,15 to 20. I know that a new patch take 3 days to fully get in your system. Give them a try for a few weeks and if there still not helping talk to your doctor. They worked well for a while but as with most medication your body eventually get used it and I'm not sure now if they are giving me much relief anymore. Good luck! I hope that they start to help you.

Take care

Jade☺️

[Pagan707 in reply to Jade22]

Thanks Jade, I’m on a 35 patch. I guess I underestimated the strength of it plus coming off the MST morphine. Day 9 now and I’m feeling the benefits, lower pain levels, less spaced but still quite anxious/emotional. My wife, who is an icu nurse, says she hasn’t seen me this bright and focused for years! Do you mind if I ask what other pain relief you use.

Thanks for replying

Patrick

[Jade22 in reply to Pagan707]

Hi glad to hear your feeling better, I hope that they continue give you the relief you need & it's understandable you still feel anxious and emotional the MST will take a while to get out of you system even though they are similar drugs you still may be having some mild withdraws so hopefully your mood will pick up soon. The the other meds I'm on is Gabapentin 600mg 3 x a day, codine 30mg 4 x a day, clonazpam 4mg and baclfen 20mg 3 x a day and 40 mg of amatripttlin before bed. Sorry I'm not sure if I spelt the medications right. Good luck, all the best &

Take care

😊

[Pagan707 in reply to Jade22]

Thanks Jade, I was on gabapentin but stopped and switched to duluxotine as it didn’t agree with me. Just had my prescription back and he has taken the Tramadol away as well as MST , I wasn’t expecting that! My GP has his own views and doesn’t always follow the treatment plan set out by the hospital pain clinic consultant! Luckily I was weaning myself off them anyway. I’m supposed to have oramorph for breakthrough pain and it’s still on the repeat prescription so hopefully get that next month. However, fingers crossed, as long as I don’t over do it I’m hoping the patches will be enough!

Thanks

[Jade22 in reply to Pagan707]

I know what you mean about GP's having there own ideas about things that doesn't match up with that the hospital or pain clinic say, my pain doctor recently told me to ask my GP to change me to tramadol 4x a day from codine and my gp said i can only give me 100 3x a day instead what the pain doctor said. These people need to communicate more. I hope you get you repeat for you oramorph that's one of the drugs that help me out, but again my gp doesn't like to prescribe me anymore it was what I was using before the patch. Hopfully for you, you'll find you don't need it as often. Good luck all the best take care

👍

[Pagan707 in reply to Jade22]

From what I have experienced over the years and my wonderful partner, she is an ICU nurse with thirty years experience under her belt and she spends half her time babysitting new Drs. That’s ok we all have to start somewhere! But the only communication between a consultant and GP is a formal Dr speak written letter, usually just once per problem per patient! It drives me nuts they are like two separate entities. My GP denying for FOUR MONTHS that the pain consultant had written to him!!! It the. Lovely pain secretary the original copy of the letter plus two emailed copies for him to Semitic he had it after I got pissed off and emailed the Practice Manager asking what was wrong with their administration/Mail system. He replied next day by text! Lol But I know have their email number, yes! No more snail Mail or trying to get a phone appointment two weeks away. I can email him direct, which I’m doing in the morning and booking a phone appointment, boy are they going to love me! I’ve read up on stopping Tramadol. According to NHS guidelines never cold Turkey. Reduce 10% per week for short term use and 10% per month for long term use. I’ve been on it for ten years! I’ve got full on withdrawal chest pains, shakes, confusion and I won’t mention how bad bowel movements are. Can’t eat because I feel sick which is playing havoc with my sugars and insulin injections as diabetic. If I’m to come off then I should be consulted and weaned off. A school kid could look this up and manage it better! As you say maybe I won’t need it but let’s taper down over two three months. Anyway, setting the wife on him after email. She’s from Belfast and doesn’t take any prisoners, even the consultants at hospital are intimidated by her while her colleagues run for hills when she starts! LolHope your well and have some balance in your life.

[Jade22]

😂😂 set the wife on them! It's good you have someone who knows what there talking about. If you don't get your oramorp maybe get her to explain about tapering and the danger of cold turkey, even though as as a doctor you would think they would know all about this. Good luck stay strong

p.s if you can handle it boiling pealed bashed up ginger and making a tea with some sugar or honey can really help with sickness, if not even ginger biscuits help.

[Pagan707]

Thanks jade, I’ve heard that ginger can be a great help. I use tea at moment but as you suggested I might take the real stuff as I like the taste. My son has bought me some Tumeric tablets. I’m a bit concerned at you using codpiece at the same time as on the patches box and on Webb it says big not too? But you know what works for you. It’s funny nearly two months on them but two issues, they work well all over so I end up over doing it and crashing! Secondly my lower lumber issue and knees are much worse. But physio still over phone due to Covid yet pubs, gyms shops etc all open, strange world. My wife is an ICU nurse and has been close contact constantly. Often physio doesn’t even touch you but looks how you walk etc! Oh well have to be a patient, patient! Hope you are well.