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[Lucy41]

Pain pain and more pain does anyone else feel like they get run over by a double decker bus on a regular basis 🤪

[Hidden]

All .the. time. Seeing I can only do Tylenol and it doesn't help. I cannot take ibu or naproxen because of stomach issues, one, Barrett's disease. Plus it doesn't help when all your joints hurts plus now injuring my shoulder at work. I've always told my friends as long as they are healthy I'm ok with myself. Hate seeing others suffer because I know how it is and feels.

[Lucy41 in reply to Hidden]

The pain is life controlling I hate it make me feel so inadequate I’m a mum of 5 and a grannie breaks my heart but I stay strong with a good sense of humour but some days it even hurts to laugh xx

[Hidden in reply to Lucy41]

We have to be strong.... For us and them. I hate showing my pain to anyone. My best friend is the only one who understands me.

[cyberbarn in reply to Hidden]

I know what you mean about not showing your pain to others, but I wonder whether maybe we should be. If more people understood how pain affects people, maybe we would have a better time of it. Trying to hide things from people is hard work.

[Hidden in reply to cyberbarn]

It is hard work. But I've been labeled a whiner when I say anything. If they only knew of the pain we go thru maybe they would change their mind about our pain. How do you convince people when you can't convince people that covid 19 is real.

[Hidden in reply to cyberbarn]

That's a "cool name" you have

[Hermes123 in reply to Lucy41]

Hermes123.Hi Lucy, I certainly do know what it is like fifty plus years of it, when I lay down at night it is like lying with my back broken in two the last year I have been in two systems that hope to give some relief twice only to get two the end and have them cancelled, that is life under lockdown. Hermes.

[ZeN01]

Yes pain is my constant companion most mornings I wake up and it feels like I have been abducted during the night and beaten up with base ball bats and then returned to my bed I have Tramacet tablets which are good but I only take them when I really need them I have all manner of Meds not a lot of them help I had spinal surgery which has not worked I used to be really fit but they told me to stop all that .... swimming they said you can do that hmmmm maybe the brook or the canal then as the swimming baths are closed .... I say welcome to the club the unfortunate club because I know what its like to live with I feel so damned in adequate now .... my music keeps me going and they cannot say don't do that ...everyone on here is in our club (you don't even get a badge) we are all looking for that one thing maybe one day we will find it then we can start a new club it sounds like you are trying and that's all you can do myself I try to smile every day I hide the fact that I am in so much pain but it doesn't seem to matter anyway .... hope that you find some sort of relief stay strong best wishes

[Aoibheann in reply to ZeN01]

Hi, spinal surgery has been recommended for myself but I am terrified. I would dearly love your opinion.

[niklenic in reply to Aoibheann]

I have had multiple spinal surgeries. I also have a spinal cord stimulator.I would ask about one of those. Grr me it has been amazing

[Aoibheann in reply to niklenic]

Thank you for that and happy New year. X

[Emma2017]

Yep it’s sooo. much fun this constant pain. After 4 years and four spine ops I sometimes wonder if it will ever go away. I never talk to my friends about it unless they specifically ask and then only briefly. I don’t really talk to my family about it, just my husband but it’s not fair on him all the time. So we decided no talking about it for a month and diverting your thought processes as much as is possible. It’s very hard when all of a sudden my leg is on fire or my back just kills but it’s worth a go. Take my meds and am trying cbd oil now to get the pregabalin and dihydrocodeine down. It’s definitely hard but it possibly trains your brain to think differently. Tell the double decker bus to take a different route, fingers crossed it will go away at some point.

[Fibroacne]

Its terrible. Some of the worst pain imaginable, and im a big guy haha

[lilian68]

yes pain is bad and really wears you down

[Lucy41]

Yes please I’m prepared to give anything a try xx

[ollifid123]

Yes, I say the same thing most days, but unless you know what it feels like no one understands.I hope we all get some relief soon. It's a very lonely place to be.

[kenster1]

yeah and no one to help apart from offer drugs.