Call for Participants: University College London study investigating how people with chronic pain understand their pain

[PainConcernProjects]

Chronic pain is difficult to understand. Current practice includes explaining pain mechanisms to patients as well as offering treatment. We do not know what sense patients make of this explanation.

This study aims to find out how a sample of people with chronic pain understand explanations of pain mechanisms. Participants will be interviewed over Skype, Zoom or similar video platform, about their condition and their understanding of chronic pain. The project will last until September 2020.

For any further information, you may contact the Researcher, Sam Keen, at [e-mail], or the Principal Investigator, Amanda Williams, at [e-mail].

This research is organised by University College London.

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I don't think there is a great deal I don't understand about chronic pain. I have had incapacitating pain since 2005. I live in Australia, a 59 year old women. I am very interested in reading your final report. All the best. Anna

[Delzek]

I see you say "Organised by University College London " does that mean you are funding the research on someone else's behalf? Or are you doing the research yourself? Also who would know who the Participants are? I only ask as I have completed questionnaires that appeared entirely innocent in the wording the research company had a good reputation. But I did not know who the information was for or who it was Shared with! Bad mistake on my behalf, having to later explain to a Government body what I meant by certain answers. All completed in innocent trust. I would advise others to check these details also.

[PainConcernProjects Partner Community Champion Pain Concern in reply to Delzek]

Hi Delzek,

This is research project by an MSc student at the University College London Psychology and Language Sciences department. It has full ethical approval by the university's ethics committee.

We are only asking for volunteers on behalf of our friends at the university, as we are able to get the message out to many people with pain via our various channels, including this one. All details about the project, including the data and confidentiality policies, will be provided to everyone who expresses an interest in taking part, prior to any interviews being organised.

I hope this helps.

[Delzek in reply to PainConcernProjects]

Thank you, I live with pain 24/7. It won't get better just progressively worse, it seems whichever DR you see has an opinion on what pain medication you should be on! At least Consultant's speak from the same page.

Thats the best I could say regarding Pain. But should have said aggressively worse! I hope that helps you understand my own pain

[Konagirl60]

I completely understand my neuropathy. It was caused by a migrated metal Filshie clip that was used ten years prior in my tubal ligation surgery. My gynaecologist told me they were safe. NOT TRUE.

A second clip ripped through ileum bowel and embedded behind the neck of my bladder.

Doctors saw them but they weren’t reported as they wanted to avoid a legitimate lawsuit. I was labeled a lady with a nerve imbalance instead.

Doctors all over the world are covering up the damage to men and women due to titanium clips and mesh.

The clips should have been removed in 2008 when I could no longer sit. I’m lucky to be alive. I had no proper pain control for several years and severe sleep deprivation that almost killed me. Doctors are NOT honourable anymore.

[Catherine2468]

I would be very much interested in participating if you’re still looking for volunteers?

[PainConcernProjects Partner Community Champion Pain Concern in reply to Catherine2468]

Hi Catherine,

That's great you're interested. If you send an email to the researcher's address in the post and let them know then somebody will be in touch to go through the process with you. We are just facilitating the advert, so aren't able to do much more than point you in the right direction.

Hope this helps.