Living in agony : Does anyone have any... - Pain Concern

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Living in agony

Does anyone have any experience with severe vaginal atrophy in their 70 . My mum has been given every oestrogen cream and pesseries around . No one seems to want to help her . She’s in agony and sits rocking in her chair , crying and unable to have a life x does anyone know if a hysterectomy would work as doctors refuse to commit x many thanks

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Yep but I'm 64.

Ive started on a relatively new tablet called Ospemifene and so far it's been amazingly good. I'm not sure a GP can prescribe it but if your Mum has a Gynae Consultant it's worth asking to give it a try.

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Bantam12 thanks will ask go on Monday and he can ask gynae consultant x forever grateful as awful watching her suffering x

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I hope she can try the tablets, my Consultant has also prescribed low dose Amitriptyline to take with the Ospemifene if I need extra pain relief but so far I haven't needed it.

Good luck x

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Hello craft...when my mother developed what her medics thought was simply vaginal atrophy in her 80s, none of their treatments helped. She went for a second opinion & discovered her worst problem was severe advanced lichen sclerosus. Once my mother’s LS treatment began, she immediately had relief from the deeply terrible 24/7 miserable gyn symptons that had not responded to treatment for vaginal atrophy.

Do you know if your mother has been examined for LS? Medics can tend not to be expert enough to recognise LS...but NHS Vulva Clinics are pretty good at recognising LS signs & symptoms because gyns & dermatologists work together there. quite a few women of all ages, especially the elderly suffer in agony because of undiagnosed LS even after diagnosis for vaginal atrophy - the 2 do co-exist...i’ve been managing both for years, but my GP had to refer me to NHS Vulva clinic for LS diagnosis. Has your mother been examined at Vulva Clinic by both a dermy & a gyn? If she hasn’t, might be worth discussing this with her + her GP.

Perhaps you’ve looked into the possibility of LS already but in case it’s useful, here is a link to a dedicated LS UK/USA support group website:

lichensclerosus.org

And here is a link to v basic brief NHS LS info:

nhs.uk/conditions/lichen-sc...

Wishing you & your mother success with her care

❤️🍀❤️🍀 Coco

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Barnclown thanks so much as not heard of that x thanks for the links too . Will ask the dr on Monday as no one should suffer like this x really appreciate you help and support x

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You’re v welcome! I totally agree with you: no one should be left to suffer the way your poor mother is. If the treatments she has tried are not helping, the NHS needs to look closer + try harder to give her effective care .+ more convincing diagnosis. ❤️🍀

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Hi there ... all great advice above by kind people .. in the meantime try YES. vaginal moisturiser... from online

Company. yesyesyes... oil based , water based or plant based natural moisturisers that help heal and lubricate the area ..

good luck to your Mum

Mx🌹

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Madge1979 thanks so much x

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Hi your poor mother. I found these online and hope they help. x

nhs.uk/conditions/vaginal-d...

londonwomenscentre.co.uk/co...

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Hyper cat54 thanks so much x

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You are welcome. I hope they help your poor mum a bit. x

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Hi, I have VA and the burning was terrible, then around three years ago things got worse and I broke out with vulval sores and ulcers. So painful, and sitting was the worst ting to do, although the pain never went even lying down. The only time it isn't there is when I wake up. I was referred to a vulva clinic, run by a dermatologist, and diagnosed with Vulval Erosive Lichen Planus, which is similar to LS. I also have pudendal neuralgia, and the two conditions together are agonising. If your mother is worse sitting, but has relief sitting on a toilet seat, and first thing in the morning, it could be pn. If she is red and sore, and has white patches, and any fusing of labia, it could be LS or LP, the treatment is ultra potent steroid cream for both of these to calm down inflammation. Definitely she needs to see a vulval dermatologist and voice her fears. It is important that she gets help and treatment. You can have all three overlapping, I have, and you need an expert to diagnose her.

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Lsura333 thanks so much . Plzd you are much better that gives hope for mum x

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Unfortunately I am not much better, but I have answers to the pain. If your Mum is online there are fb groups who will help and support her with this.

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Laura333 bless you thanks x

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There is a CBD cream, NOT any made from hemp, that's the scam of the decade, it must be made from medical marijuana. Find one that is a ratio of 2:1, meaning double the amount of CBD to THC. Make sure the THC is from an Indica strain, because Indica is better in helping severe/chronic pain than the sativa strain of medical marijuana. Or you may even want to try a 1:1 ratio. If a cream isn't helpful try an edible form of medical marijuana to help manage pain. If you are not familiar with how helpful medical marijuana is with pain management please start researching.

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Zoey11 thanks so much x

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