CBGD

[connie50]

HI EVERYONE I WAS DIGODNOSED WITH THIS HORRIBLE DECEASES ABOUT 2YRS AGO. I ALSO HAVE RESTLESS LEGS {NO CURE FOR THAT EITHER ] I HAVE BEEN TAKING TRAMADOL FOR 2YRS FOR THE PAIN AT NIGHT.BUT RECENTLY BEEN GIVEN ZOPACLONE BECAUSE I CANNOT SLEEP. GOT INSOMNIA AS WELL AS .

. I AM ABSOLUTLY KNACKARD WHEN I GO TO BED AROUND 10ISH BUT FOR SOME REASON I SEEM TO WAKE UP [ITS MY LEGS I THINK] ANYWAY ITS THE DROWSINESS DURING THE DAY ALL I WANT TO DO IS LAY DOWN THATS THE ONLY TIME I FEEL NORMAL WHEN IM LAID DOWN FROM THE CBGD AS ANYONE GOT ANY SUGESTIONS,I KNOW THERES NO CURE FOR EITHER THE RLS OR THE CBGD BUT ITS THIS DROWSINESS DURING THE DAY,I HAVE TRIED DIFFERENT COMBINATIONS BUT IT MAKES NO DIFFERECE WHICH EVER WAY I DO IT.

[FRreedman]

I would try to arrange to do something every hour or so.

10-00 make a cup of tea and toast

11-00 wash up stuff from tea earlier

12-00 prepare lunch

1-00 Eat lunch

2-00 clean away everything from lunch

If you do this, it is no good doing anything in advance or leaving it until later. You will need to set an alarm for each time. I know it looks and sounds stupid, but by having something to do at a particular time should, hopefully, set your body (and brain) new targets. Once you have got used to this try adjusting the times. It is allowed to have a rest or sleep between tasks (That's why you will need an alarm clock.)

[connie50 in reply to FRreedman]

thanks but I cannot stand up for long,before I fall.

[FRreedman in reply to connie50]

That is why you only do one thing at a time. You set the limit, but you must not let yourself go for more than one hour, even if all you do every hour is walk round the armchair, it really is important.

[connie50 in reply to FRreedman]

thanks for your reply BUT I cannot stand up the only time I feel normal is when I'm laid down. once again thanks SUE

[hypercat54]

HI i have never heard of CBDG and even googling it doesn't give any info. What is it please? x

[connie50 in reply to hypercat54]

if you see my reply to the above it should tell you, you cannot pronounce the correct words, for it if you are having trouble finding it please let me know.

[Hidden]

What is CBGD?

[connie50 in reply to Hidden]

try putting it in search engine it will tell you what it is C B G D is a short version of what it is you cannot pronounce the correct name, all I know it belongs to the Parkinson family but its a lot worst. If you cannot search it please get in touch

[SH55]

My daughter has had good relief from restless leg syndrome (horrible) with acupuncture. It’s worth a try.

[connie50 in reply to SH55]

hi and thanks for your reply I have tried that,i think I must have tried everything.

[SH55 in reply to connie50]

🙁❤️

[connie50 in reply to connie50]

YOU CANNOT BE PUTTING IT IN PROPERLY BECAUSE EVERTIME I PUT CBGD IN SERCH ENGINE IT COMES UP PLUS EVERYONE AS SENT ME A MESSAGE

[connie50 in reply to connie50]

THEY CALL IT CORTICOBASIL GANGLIONAL DEGENARATION IN OTHER WORDS CGB