Hermes123.
As a new comer with this decease and just being told I was suffering with it, plus my one and other pain conditions! The consultant never bother to tell me what it entailed, since recently reading the story of the Desert Island Disc presenter and seeing the video, it makes me wonder how people cope, I had never heard of it before, I would like to hear the views of fellow sufferers, how they get though day by day are there groups for fellow sufferers. thanks to all. Hermes.