This is my first post so hope this go's okay.(22,chronic back pain for 3/4 years getting by at the moment with zapain and pregablin. Still working but struggling and trying to do light excersice and stretches everyday)
I am having problems with my treatment and it seems to have come to a halt. I feel like I'm not being treated seriously enough trying to be really greatful with the time they have spent on me but the last few months have been a disaster!
I've been with a pain team for about a year now and in September they decided to halt my appointments with an occupational therapist as i am not improving (in fact my pain is getting worse!) and they want me to see a physiologist but I have recently been told I have to wait a further four months.
My doctor decided when they stopped treatment to send me to a rhumatologist to investigate more into my pain. He was unhappy they didn't provide the treatment he thinks I need.
I waited another 3 months to only receive a letter from the pain clinic saying rhumatology won't help and they cancelled the referal.
I now cannot for the life of me get hold of the pain clinic go discuss the decision every time I phone them it goes to voicemail and I have not heard anything Back!
My doctor has been away for four weeks and the receptionist at my surgery have been rude and refuse to book any appointments till he's back.
I'm at wits end being told different things and I really don't know what to do from here. I'm thinking of making a formal complaint as I feel like they are not listening to the help I need. I have looked into PALS but they wont see me till I get revered to by a doctor!
Sorry for the long post,I'm usually not one to complain but I am stuck.
If anyone can help or share similar experiences I would be so greatful!