Worn out: Recent chronic lower left back pain... - Pain Concern

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Worn out

47 Replies

Recent chronic lower left back pain.chest tight.leg and feet pain.doc.took 25 tubes of blood from me.m.r.i. xray.still no diagnosis.hair brittle falling out.nails brittle 2.please help

47 Replies
deejames profile image
deejames

Hi rainbow. I've no medical training so can't help with a diagnosis. You seem to be getting the right tests and scans though so it just a waiting game to see what your GP discovers from the various tests. It's not pleasant waiting for results but try to distract yourself from the pain. I would definatEly say keep exercising in a gentle manner even if your back is sore. The inclination can be to try to 'protect' it by not moving a lot but that can lead to more stiffness and discomfort.

Let us know how you got on.

Dee

in reply to deejames

Thank you.i have insomnia as well.tests are all negative.i had a dream 2nites ago.i slept for an hour.my dream was tuberculosis.trying to get tested as soon as possible.Doc ruled out aids.h.i.v.hep.diabieties.fybromyalga.

And so on.but not Tb

in reply to

Sinutitis.rhinutitis.all new to me.yes i use saline drops now each day for dryness.mupirocin is the only thing to clear my head.antibiotics did not work.i have been attacked with all new stuff in 2years.one severeity after another.wore out

in reply to deejames

THANK YOU DEE.my dermatologist said my hair fell out from severe chronic pain.my ankles are swollen again right now.i went to a clinic .did tb skin test today.will know by tuesday.ive been very ill for over a year now.

in reply to deejames

Well.i exuasted general doctors.looks like all my problems are obgyn.but he swears its not.my specialist obgyn is new on the case and made me aware of a polyp and sacrum stress pain.looking like a failed ablation from endometerosis last year.on the hunt with specialist now

rosewine profile image
rosewine

If all the tests have come out negative has fibromyalgia been mentioned as the symptoms you are describing can all come from a fibro problem, just a thought. Hope you can get some answers soon as I know from experience the not knowing is horrible.x

in reply to rosewine

Thank you rosewine.yes doc gave me fibermyalga test 2 months ago.took 25 tubes of blood from my arm in 2 months.still nothing.the m.r.i on my back showed inflamation.that is all i know for sure so far.

rosewine profile image
rosewine in reply to

I was only asking as as far as we know on the Fibromyalgia forum there isn't an actual blood test that can prove whether you have fibro or not. They tend to take a series of bloods in order to make sure that you don't have illnesses like lupus, RA, thyroid problems, which have some overlapping symptoms with fibro. Therefore, it seems to be a process of elimination if after all those have been ruled out and pain is not being caused by joint problems as in osteo arthritis often the conclusion is that someone has fibro. Many of us with fibro also have osteo and other problems which can confuse things. Do hope you get some answers soon.x

in reply to rosewine

Oh.my doc ordered a bone density test.i put it on hold cuz i need a break.i went to e.n.t.and otolarynoligist for thyroid and all new to me severe sinutitis.i was on antibiotics for 8mo.for my nose.had pnumonia2.that was the begining of this hell.nose started 2 clear up.then back pain knocked me to the floor from nowhere.crippling pain size 12 everyday.allday now for 3 mo.

rosewine profile image
rosewine in reply to

I can imagine they wanted to do a bone density because of the back problems. Sometimes an infection that is either severe or very prolonged can really bring the whole of the body down. I too suffer with sinisitus. At the moment I am trying the nasal salt washes where you have a special plastic bottle and put in the solution mixed with warm water and this is squeezed through each nostril to wash them out. Have only been doing this for about 4 days and the difference it has made to me has been amazing.x

in reply to rosewine

Yes.saline nasal now daily.mupirocin 2% is the only thing thay cleared me up.sinus issues new 2 me

in reply to rosewine

Yes .since this started with sinus stuff.the left side of my lower back put me in the hospital.pain ive never felt before.pain mostly stays on the lower left side and shoots down my leg.

rosewine profile image
rosewine in reply to

Is the pain that shoots down your leg from lower back going down buttock and down back of leg as of it is it could be a sciatic pain which is really nasty?x

in reply to rosewine

Yes.doc said siatic.i have been attacked the last 2 years.1rst 2 boils lanced.omg!!then sinus crap.im almost afraid of the public without 99 vacinations now

rosewine profile image
rosewine in reply to

That is how my poor friend is if she meets a germ she has a chest infection it is as though her immune system is shot. I have started making her use hand sanitiser after we have been around shopping centres and befire eating when we go out once a week and told her to do the same when she is out and about and she seems to be having fewer infections.x

in reply to rosewine

Yes .i like hand sanitizer.and ive been warned of its overuse.just like lysol.cant win.if someone coughs or sneezes.now i think i will run.

rosewine profile image
rosewine in reply to

I've laughingly told my poor friend she has either got to go into solitary confinement or start wearing a mask.x

in reply to rosewine

I thought about the mask.Micheal Jackson wasnt so crazy wearing a mask.but im good .i will where a helmet.lol

in reply to rosewine

T.B skin test negative.so i will ask my doc for bacteria infection test.my illness began with MRSA.hospital lanced a boil.but no culture test or blood test.i was on 10 different antibiotics for 8 mo.no better.found a family doc finally.he gave me mucipiron 2%.got better for a month.doc moved.have new doc now.lots of tests.i have always believed i have an infection.off antibioitics .so im ready for a test now

rosewine profile image
rosewine in reply to

Good luck with it all.x

in reply to rosewine

God Bless us in Jesus name

deejames profile image
deejames

I feel that Rose wine could be right. Fibromyalgia tends to be diagnosed by a process of elimination but you do seem to have many of the symptoms. Not good if it is as there is no cure but there are many stratagies to help manage it.

Hope you get some more definitive answers soon.

Dee

in reply to deejames

I have been very ill for to long.it came on suddenly with various symptoms.my doc is puzzled.refering me to chronic pain specialist.cancer tests are fine too.i had almost a complete blood work up doctor said.still no answer.i cant stand up longer than an hour on my feet now.quality of life for a mutitasker is gone.i feel as if my spine is invaded by bacteria.its so wierd.

in reply to deejames

Well if tb.skin test is negative.i will see if doc will do tb blood test.and also ask again about fibromyalga.doc.said thyroid is fine 2.thank you for caring this illness is madning.ive never been ill like this before.this is in my top 5 of hardest life issues for me.

minka profile image
minka in reply to

I have tested positive for the once then it sort of whent on its own now I'm having problems again started in my ankle then into my knee now my feet feels like something is eating the bones and my lower back feels stiff can't walk to far I also have little nodules on my hands where does your start and traveled to

in reply to minka

Lower left back.travels to front left knee.ankles swell.balls of feet hurt.sometimes pain shoots up my back to my neck.both sides shoulder blades.tb skin test on my arm looks red and raised so far.

minka profile image
minka in reply to

If it's red and raised this could be the answer tB you can have in your body what is called latent tB doesn't mean u can get tB but sometimes it can be triggered then it starts where where your first symptoms to appear this can be bone related as sometimes it doesn't even touch the lungs. Do you have any heavy sweating at night ?

in reply to minka

I did a blood test for mrsa and staff months ago.it was negative.but i was on 8months of antibiotics for bacteria and viral infection.why wouldnt T.B show up in that test

in reply to

T.B. TEST negative.so my right back to where it all started.Mrsa.and endometerosis.i was never tested for Mrsa.yet hospital lanced my boil and called it that.still sick.

in reply to minka

Yes.yes last week i woke up sweaty.i sleep 4 hours a night now.sucks .arm red bump.i need a diagnoises.this one would suck though.i feel like i have an infection.hard to breath for 2years .chest hurts.elephant on chest .xray fine though i stopped oregeno.basil.biotine.curamed.

Honey.fluid intake alot.not much alcohol in 2years .oh and vinegar and rosemary

in reply to minka

Tonight on the news.i read .well i think yahoo.it said Hansens disease is at a school in california.new name for Leporsey.nodules on hand.pain.food for thought.

in reply to deejames

well part 2 is i have edometerosis.diagnoised 15 years ago.had ablation in 2009.all went fine.2014 pain back.2nd ablation 2015.now worse pain and now bladder leakage.my neighbor just said all my issues could be the 2nd ablation.i go 2 urinologist 2mor.

Hi there you are certainly going through a terrible time, s others have said it does sound a lot like fibromyalgia/sciatica fm has so many strands, my fm has been diagnosed over 20 yrs agoI hope that you will receive the appropriate support including pain management,pace yourself its a bit late in the evening now but I hope to talk to you again. God blesss

Rosy_Holly profile image
Rosy_Holly

Hi Rainbow. Sorry to hear all that you are having to cope with. This seems like a growing problem for so many people. I have in the past had serious back issues. The last few years have been pretty bad for me, this time with so many seemingly unrelated symptoms. I do have a definite diagnosis for heart problems , Fibromyalgia and hypo thyroid (now for over 30 years). I have been in and out of A & E and hospital many, many times over the last few years. They tried testing me for Pheochromocytoma, Conns Syndrome however

Hospital Labs somehow never managed to get a proper test result, due to inefficient testing. So I have given up on this. Whilst going through this Pheochromocytoma testing stage I joined a Pheochromocytoma Facebook page and did a lot of reading up myself. One of the things which I found out was if you are found not to have Pheo it could be Mast Cell Syndrome, which apparently is affecting a great deal of people throughout the world. A word of warning - a lot of the medical profession are not aware of it, so if you mention it to your GP expect him to look surprised, hopefully he/she will be aware. You might like to look up Mast Cell and see if any of it fits for you. Best wishes, look after yourself and do not give up, it's just finding someone with the answer to your problem. Everything comes to him who waits as they say!

in reply to Rosy_Holly

Thank you.health problems suck.all of my illness began when my boyfriend was bite by a brown recluse spider .then at the V.F.W.a woman came in with severe t.b.well hell.Thank Yah for alcohol.it helps.

Klik profile image
Klik

If you are on pregablin or similar drugs ask your gp to give you a different pain killer read up pregablin drug family side effects I had similar side effects and more to you with this drug.

Klik

in reply to Klik

Methocarbamol 500mg.ib800.thats it.my back was a little better.not much.pain went to legs worse.harder to breath.blisters.

Hi Rainbow41, I have the exact same symptoms as you and have been back to the doctor's countless times but he cannot tell me what is the matter with me. I have an under active thyroid for which I take Levothyroxine and he recently prescribed Amitriptyline which apart from improving my sleep has not done anything to relieve the pain. He also mentioned Fibromyalgia. This has been going on for the best part of a year now.

Would be interested to hear how you got on.

in reply to

My illness began with a boil.hospital lanced it.never took culture or blood test.said it was Mrsa.gave me antibiotics.hospital lanced it again.next boil.urgent care lanced.more anibiotics.next boil doc office gave me cream and antibiotics.never tested.next severe sinutitis more antibiotics.now in my back.docs clueless.just started and stopped methocarbamol for back.insomnia 2 hrs sleep.leg and chest pain severe.doc finally gave me bac.inf.test 2mo.ago.but i was on antibiotics.false neg.perhaps.antibiotic free.nose still gooie.try doc and test this week.will post

in reply to

I sympathise. You have been through a lot. Hopefully they will find out what is the matter with these latest tests.

in reply to

Just left hospital 4back pain.he wont test me for mrsa.cuz my new boils went away last week .my doc told me to put mupirocin on them.ok that treats the boil.now is the infection in my back?dotors dont care

in reply to

Just a thought. As you have been prescribed antibiotics so many times are you taking anything? Ie probiotics etc.. Antibiotics not only gets rid of bad bacteria it also gets rid of the good ones that your body needs and therefore lowers your immune system, which in turn makes you more susceptible to illnesses.

in reply to

Ok.went to urinologist today.started at hospital.hospital gave me steroid.went to walgreen.to fill script.lips.face tounge swollen.no fill.pharmasist.freaked.said i need benadryl.ok doc app at3.he said sacrum.severe pain after polyop .refereed to his specialist.

in reply to

I go to regular doc tomor for mrsa talk.i was at specialist today.obgyn said polyp dosent effect me.specialist says it did

in reply to

Today xray on pelvis.specialist says severe sacrum pain.and finally a MRSA test.

in reply to

Update.bacterial infection test negative.first Mrsa test ever negative.specialist says sacrum pain is back inflamation.i had 2nd ablation done last year for endometerosis.i came out worse pain and bladder leakage now.specialist obgyn on the case now.

in reply to

yes i feel antibiotics were killing me.different docs.10 different antibiotics for 8 mo.my immune system was weakend.this all started with the boil.and a guess that it is Mrsa.no hospital will test me.my doc test me once while on antibiotics.negative.

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