Ketamine lozenges

[terri19]

Hi guys, was wondering how many of you have been given ketamine lozenges , I was given them from my pain team while I wait for a nerve root injection , OMG they are amazing for the pain in my back, I still have pain in my legs , but I'm walking straight, I only have pain in my back once the lozenges wear off, I was told to take 3 whole tablets a day, but they make me spaced out , so I cut them in half , and only take them when I feel the pain coming back, I done cold turkey on any opioids, so the pain specialist suggested these, anyone else take them ? Or have any info , to me they are a miracle for pain relief , but I don't here anyone taking them , is their a reason ? Cheers Terri 

[terri19]

Yes they are 25mg , no brand name on them though, I had to go to a compound chemist to have them made, it took 24 hours. Can't understand why more people are not taking them . I live in Perth Australia ( oringionally UK) so maybe that's why a lot of people don't know about them , I'm not sure ? Have you taken them yourself? Wonder if they are addictive , but they work and that's all I care about at the moment. 

[lowlife]

It's great that you've found something that works. And I hope the injection works for you as well. I'm pretty sure that ketamin isn't legal in the UK which is a shame when there's so many people with chronic pain. I hope your procidure works well for you but I bet it won't be as good as the keratin lol. If it can relieve a horse it can relieve a human. Enjoy the relief while you have the chance.

[Cmc43]

terri19   Sounds fantastic! I believe my recent treatment may be wearing off, as walking other than a few yards is painful. Still otherwise pain free. If things deteriorate, I wouldn't mind taking a horse tranquillisers. lol

[Cmc43]

terri@19 ketamine is being investigated as a potential treatment for lots of conditions. I got quite excited at your post until learning that you live in Oz. I don't think it is available in the UK yet. 

[Suzyhayes]

Ketamine is potentially a dangerous drug used as an anesthetic particularly in animals.  Side effects can be quite horrendous so I hope your doctor will be monitoring you carefully.

Personally I wouldn't touch it.

[Pebb_71 in reply to Suzyhayes]

I has Crps and they commonly recommend the use of Ketamine as an anathesia in an effort to prevent the spread of the disease during surgery. They also use is to help with pain. But I thank you all for the constructive criticism.

[VeryKnowledgeable in reply to Suzyhayes]

You have no clue what you are talking about. And your baseless claims could scare away people who might find tremendous benefit to this therapy. What supposed side effects are you referring to?

Because myself, and everyone I know who has tried it have all reported the same "horrendous" side effect: feeling better. There are no horrendous side effects, hardly any side effects at all, I have none. Other treatments caused *truly* horrendous side effects.

No next time you want to chime in something you know nothing about ("Ketamine is a horse tranquilizer you know!") maybe just don't.

[terri19 in reply to VeryKnowledgeable]

who are you talking to please, what post are you referring too 😵

[VeryKnowledgeable in reply to terri19]

I was responding to @Suzyhayes

. They said:

"Ketamine is potentially a dangerous drug used as an anesthetic particularly in animals. Side effects can be quite horrendous so I hope your doctor will be monitoring you carefully.

Personally I wouldn't touch it."

Because they personally doesn't know what they are talking about.

[Usewhatworx in reply to Suzyhayes]

Just stop please. You have NO clue

[Hidden]

I've been taking Ketamine in liquid form 50milligrams in 5 ml  4x daily for some years now I get a great deal of relief from it. I have never suffered any side effects very pleased that you are also  getting relief from it

[linlow in reply to Hidden]

they may not be visible. One of the effects, other than addiction of course, is a gradual thickening of the wall of the bladder.  You might not notice that until until it stops working.

[Curlygirl54 in reply to linlow]

Agreed Linlow,

I'm a counsellor and worked with someone who used ketamine recreationally - and lost their bladder altogether. I for one wouldn't touch it due to such serious side effects. There really is no such thing as a silver bullet pain med that has such pain relieving qualities without major risks.

Shirley

[Suzyhayes]

I'm surprised you have been taking ketamine long term and without side effects.  Is it prescribed by a doctor.  It is categorized as a banned class B drug in the U.K. and has been responsible for a lot of deaths of people using it recreationally.

It is used medically but mostly under supervision in hospitals as an anesthetic.

[VeryKnowledgeable in reply to Suzyhayes]

STOP commenting, you have no experience with this treatment and are just spouting what you have read by others who are equally uninformed. They aren't handing this stuff out like candy, it's often a last resort and a doctor will explain all the risks.

In other words, we don't need someone like you here trying to scare people. You 'wouldn't touch it'? Ok, bye then. No idea why you would be here in the first place.

[Usewhatworx in reply to VeryKnowledgeable]

Suzy needs to take a valium

[terri19]

I have no side effects from ketamine lozenges , although I cut the lozenges in half , as it relieved the pain almost straight away . Yes I'm being monitored by the hospital pain team , it's just a relief  not being in pain . First time in a year , or drugged up, I find them amazing , wish you guys could get them in the UK , their is no need to be in pain with the right meds and monitoring , I have been taking so many different meds been hospitalised 4 times this year, had two met calls with all the meds they were giving me, I was allergic too , ketamine lozenges are working for me , but I must say my pain specialist says they are only for short term, so they must be addictive , like most opioid meds , which I done cold turkey on , ketamine is not a opioid I know, but the side effects off opioid almost killed me . I'm happy for now and pain free 😃

[linlow in reply to terri19]

like opioids they are extremely addictive but it is all the nasty stuff they do to your insides that makes them something to be very cautious of.

It does feel good to be pain free for a short time though doesn't it

[VeryKnowledgeable in reply to linlow]

Ketamine is not physically addictive. Just psychological, as is the case with everything else.

The clinical dose of ketamine is FAR less than a recreational dose, btw. It doesn't do 'nasty stuff' (is that a medical term?) to your insides.

Maybe you shouldn't be commenting if you don't know what you are talking about.

[Usewhatworx in reply to VeryKnowledgeable]

I am taking these as well. 50mg gummies. I use this for severe nerve pain due to lacerated peripheral nerves in my thigh. I've tried every damn drug out there. What is your daily mg use and how many times per day? I have a cool primary doctor that has them compounded at the hospital pharmacy. I get good relief on a 50mg dose but the half life is short. I may need to up the dose.

[Suzyhayes in reply to VeryKnowledgeable]

Are you a professional medical expert. You seem to be very sure of your opinion on the use of ketamine and scornful of other people’s opinions

[VeryKnowledgeable in reply to Suzyhayes]

Nope, not a medical expert. And yes, I *am* very sure of my opinion.

And I dislike ignorant people who post nothing but negative comments discouraging complete strangers from trying something that may help them.

You have demonstrated you know nothing about this drug, yet to continue to post here. Why? You are not contributing anything, only taking away. Learn what you are talking about and how to engage in healthy and helpful discourse with other humans or go away.

[Suzyhayes in reply to VeryKnowledgeable]

My comments on the dangers of Ketamine are based on the advice I received from a top pain consultant in a hospital in France specializing in pain relief treatments. I was strongly advised against taking it because of long term damaging effects particularly bladder damage. But you it would seem know better although you don’t say from where you obtained your superior knowledge.

[VeryKnowledgeable in reply to Suzyhayes]

Now we know. Your your opinion is based on the opinion of a "top pain consultant" in France.

Mine is based on the many studies I've read, my personal physician, my osteopath, the surgeon in my family who I consulted, the several doctors I know running ketamine clinics, and myself, because I've been using ketamine for about 2 years now. I tried 14 different drugs and drug combinations over the course of 18 years prior to ketamine. All of them had horrible side effects and/or simply didn't work. Ketamine does.

So I'm going go ahead and assume I am more informed, and more in a position to give my opinion on the matter. Regardless, I'm not telling anyone to go and do it, all I'm saying is that, based on current studies and my own experience, that it does actually work. You are doing nothing but taking away from this community, trying to scare others, because you think hearing something from one person, in one field, gives you the right to repeat it as though it's fact.

Your opinion means nothing. My opinion means nothing. But I hope mine encourages people to seek out this option, and decide if it's right for them. You are telling people not to, and are in zero position to do so, because it's been clear from the start that you don't know what you are talking about.

I won't be responding to any more comments you make. You have thus far had nothing positive to say, or any informed knowledge to contribute. I have no idea why you are here, since you don't seem interested in exploring treatment options at all. But you clearly like attention. Goodbye.

[Suzyhayes in reply to VeryKnowledgeable]

Contrary to your opinion of me I have been sharing information and advice with other pain sufferers on this sight for the past seven years though not so much in recent years as never having found any medication or treatment that works for the severe neuropathic pain I had nothing more to contribute but unlike you most of the people who post on this forum are kind, empathetic and try to be genuinely helpful. I find you arrogance very unpleasant and off putting. You may think you are Very Knowledgeable but I doubt if you are any better informed about Ketamine than I am.

Good that it works for you but I stand by my contention that there may be long term internal damage and people should be made aware of this. I wish you luck even though you seem to have an unfortunate personality.

[Cmc43]

To terri19

Research is ongoing into Ketamine for depression. Trust your Drs as they seem to conclude they are safe for you - at the moment. I have been offered and refused Morphine - because I have seen first hand the side effects but I have been in Pregabolin for a number of years, even though there is a risk of liver damage.  Most prescription drugs have side effects but hadI been offered Ketamine on the basis of your result, I would have taken it. Intolerable pain is no life at all. Monitoring is the key.

I am so glad you are free of pain. 

CMC 43

[VeryKnowledgeable in reply to Cmc43]

If you are able I highly recommend it. Ignore others here posting stuff trying to scare people. (Maybe they work for Pfizer and are mad this won't make them any $$)

It works.