Hoping you are all managing well pain wise at the moment.
I thought I'd update on the ongoing SCS saga.
You may remember I had to have all the equipment and leads removed because
there was a slight hint of redness / infection on the skin where the leads exited. Obviously I was devastated at the time but the team at St Thomas' are amazing and they were very sensitive to just how upsetting it was to hear that. So I was sent away to heal and when it was completely healed I phoned them on Tuesday and spoke to the lovely nurse who had removed the dressings on that day and spotted the redness and called in the docs. I told her both sites had healed well and no sign of anything untoward now and was there any possibly of getting some idea when I would be going in for permanent implant. She said they would be having a team meeting the next day and would ask the doctors and give me a ring. Like everyone else I have come across at St Thomas' chronic pain team she was an absolute sweetie.
Half an hour later I had a call from her, she had grabbed the surgeon and spoken to him about me and got me listed for Tuesday 19th
So, I go in on Mon 18th, have the permanent implant surgery on 19th and hopefully home - fully bionic on 20th.
I'm excited, terrified and disbelieving all at the same time. The trial was so short I haven't got any memory of how it felt but in my head I know my pain scores were lower as I had to record them.
The usual,concerns about surgery - I have to go for swabs of my back next Tuesday to be absolutely certain no sign of anything there and there is always the fear of being cancelled the day before or on the day due to emergencies coming in.
And the obvious concern - what will it feel like having this alien thing in my buttock??!! The leads are small and I couldn't feel them during the trial but the actual spinal,cord stimulator unit sits under the skin in the buttock and has to be charged up,every night 😳
A new way of life and a life which is far more manageable and far less limited.
We can but hope, but I know you guys share with me the struggle with hope when so many surgeries and procedures over sooooooo many years ( 43 in my case ) have resulted in the extreme level of pain and lack of mobility I currently live with.
So, that's me, maybe on the threshold of some improvement, but major surgery and recovery to get through first.
Thanks everyone for the support you have given me, it means so much. I'll keep everyone posted as events unfold.