New kid on the block.

[horseylover]

Hi there. I am new to this so please be gentle with me! I am a persistent pain sufferer, due to a health crash and 3 operations. I am very positive the majority of the time, but this is where you guys come in? When i' feeling low it's only people who live with pain daily that really understand how i'm feeling and won'the judge me for it? So I hope to get to know people and look forward to your comments!! Horseylover er.

[mwalker23]

Welcome to the site. I also have chronic pain due to an injury. You are correct - people don't understand unless they suffer also. You will get a lot of support on this site and the people do understand as we all have different conditions but suffer pain. It is normal to feel low when you are living with the pain. When I feel low it is good to come on the site and you don't feel so alone. There is always someone here to talk to. Take care. xx

[freddyboy]

I can empathise with you I have been living with pain since 2004,I've tried all the pain killers morphine patches nerve blocks to no avail all due to an operation that went wrong and left me with a peripheral neuropathy.( damaged nerves) in the left leg

I even had my left knee replaced as an elimination but that didn't help either. I can only walk a short distance due to the pain, I can only get a few hours sleep IF I TAKE SLEEPING TABLETS . I am now awaiting a Genicular Radio Frequency Ablation nerve block, already had a Femoral nerve block and a spinal nerve block to no avail.

there is no way I would survive this EXISTANCE if I hadn't such a supportive wife

who is no longer a wife in the real sense of the word as she has now become my carer and it has ruined her life, we cant play sport or go abroad or go anywhere too

far because of this disability

I had just retired when this happened (62) retort from my GP and surgeon "These things happen " So......... to get back to your original question Horseylover you will find that reading other stories of LIVING WITH PAIN Will give you a some comfort

in your struggle, I really know where you are coming from, I've been waiting 3 months now for this Genicular Radio Frequency Ablation nerve block ,so I will update on this site my progress .

Regards Freddy

[Boozybird]

Hi Horsey, welcome here where we all GET IT! Join in...😜

[lowlife]

Hi there, yes definately the right site to be on. When the pain gets too bad its very difficult to keep that fake smile on your face. I spend most of the time pretending that all is ok and then suddenly i cant take it any more and feel ill with it and end up having a total melt down. However i do push myself too far all the time so its my own fault really. I still want to go on holiday like everyone else and i get depressed if i stay in so i carry on the best i can then cry my eyes out after lol. You don't say what is causing your pain? There will be someone on this site that is going through the same as you that may be able to offer some advice as to get out and do more so that you have a better quality of life as at the end of the day thats what we would all like. Keep in touch. X

[Heorte in reply to lowlife]

Have taken enormous gamble, using the wheelchair at each step and have gotten to Australia to meet our two year old grand daughter. We built in hire car and can stay in any place for as long as necessary. It is hard work and often fixed smile, but nothing too much worse than home life! Go on, plan and try it!

[johnsmith]

I find when I get low that it is a sign that my brain has had enough. So I go to bed for a few hours. This seems to help in my case.

Hope this helps

[rowantree]

I find it's good to hear about other people as it makes me feel less alone. I'm not sure why but I also feel supported when people have pain god different reasons than me, it also makes me realise there are many if us for many different reasons I suppose. My pain us due to Ehlers danlos syndrome hypermobility type (EDS-H), causing worst pain in my feet and hands. Can't walk at the mo, using a wheelchair, but it goes mean I can get out and about without the pain being too awful.

[Heorte]

Yep, many chronics here with fixed grins who need a good moan away from their friends and family. We're here and listening