Hi All, This is my first post on this forum so a bit of background. Thirteen years ago I had my bladder and prostrate removed due to Bladder cancer and had a urostomy created, (which is an plumbing system that ends up with a external pouch stuck to my abdomen which i change every few days where my urine collects). I have had another 13 operations since 2002 mainly for hernias around the site of the urostomy which has left my stomach looking like a motorway map of the UK lol. I should also mention that in 1992 I had L4 and L5 discs removed after they had shattered
As a result of all these surgeries i have suffered from chronic pain of my abdomen for 5-6 years and have been under the care of my local pain clinic for four years now. We started with medication, Paracetamol, Gabapentin, Pregablin, and last year we added Targinact, we got to a stage of using 3 times (3600mg a day) the "normal" GP dose of Gabapentin. We have since stopped gabapentin which has increased my pain by 10-15% but weirdly improved my sense of smell 100%
My pain consultant says, that i have a combination of scar tissue damaged nerve endings and mesh from the hernia repairs all melted and mingled together which have created a welded mesh of pain.
I have so far had 45 RF treatments to try and find "the nerve" that is causing the pain to no success. (RF is radio frequency treatment, using a portable x-ray machine and a ultrasound machine the insert a needle to find a "good spot" i.e. really really painful, then the add a bit of local anesthetic and insert the RF neddle which is then heated to 70-80C for 45-60 seconds.)
The most I've had from the RF treatments was a couple of weeks of slight reduction in pain but only 10-15% reduction, so unless i want to add RF treatment to my list of hobbies as my consultant said to me recently it is time to think of something else.
In a way i feel reasonably lucky as my consultant, though a little wacky at times really does care and want to help, though his waiting lists are rather long, he is more than happy to reply to my emails and has recently told me that i should take the time to research SCS (spinal cord stimulation) as this seems to be the next step in my treatment. When he first suggested it i just thought no way, it's too scary, not for me, but after a day's reading I'm more confused than before i started.
So I found this forum and thought I'd give it a try, I'm hoping to find some information/advice from people who have had the implant, does it work? Has anyone had it for abdominal pain rather than back pain? How much reduction of pain does it give? etc etc
So thoughts & advice please,