Tomorrow is a big day for me. Finally been referred (again) to the pain clinic after being told they could do nothing for me any more ( ????).
I know that I want them to try sacrioilic joint injections again. I had two sets of positive outcomes a few years ago with the steroids. Then they tried nerve animation ( I think I've got that correct - burning the nerve endings) . That was not a success I think for several reasons. 1 I was tapering off oral steroids for my alopcea and was therefore having more pain because the steroids were leaving my body and 2 because of taking steroids for a year before I did have much less pain and stiffness. I was mountain biking sometome s on very rough and steep terrain every week. I could well have put much more additional strain on my already weakened spine. Strangely enough nobody warned me about the oral steroids. I had the most glorious but crazy 9 months of cycling and walking.
So my thinking is that as the steroid I ejections worked please please please could I try them again and give my poor wasted muscles a chance to get some strength back to help me support the deterioration of my vertebrae.
If I'm refused and manage not to sob hysterically iis there a route with the NHS that I can take to appeal ?
Since I live in the Scottish highlands asking to go to another pain management clinic is not really an option.