Getting sick and tired of all of this pain - Pain Concern

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Getting sick and tired of all of this pain

inpain31 profile image
35 Replies

Ive been getting progressively worse over the past couple months im not sure how to deal with any of this anymore. I feel like giving up already. I post this to vent I have no one in my life who understands what I have going on in my life. I get judged and feel so alone. I'm so depressed. I can't pull myself or of this. I go to the doctor on the 20th and the first thing the MA told me was you know we do not prescribe pain meds right. honestly I don't care about that I just want answers and some one to listen. They make me feel like I'm crazy. Am I? Should I just give up? I don't know what to do anymore. I can't stand this anymore. I just want help. I need help.

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inpain31
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35 Replies
Maggiet profile image
Maggiet

Hi there. I'm sorry you're feeling so ill and low. I suffer chronic pain from a variety of conditions and it really gets me depressed. Have you sought help from anyone? My gp diagnosed depression and I was put on Citalopram. I visit a pain clinic and when Iwent yesterday he asked if I want help for the pain or for my depression and I told him both! He's tweaked my meds and referred me to a clinical psychologist to help with how I feel. I sincerely hope you can get some help and feel able to carry on. Sending a Scottish hug your way.

inpain31 profile image
inpain31 in reply to Maggiet

My doctors diagnosed me with fibro And had giving me amytriptline. It is not helping at all I've been through 6 doctors now because they up and move on. One doctor just passed me on to another doctor cause she couldn't figure it out. Can I ask what a gp is?

inpain31 profile image
inpain31 in reply to Maggiet

My doctors diagnosed me with fibro And had giving me amytriptline. It is not helping at all I've been through 6 doctors now because they up and move on. One doctor just passed me on to another doctor cause she couldn't figure it out. Can I ask what a gp is?

rosetta54 profile image
rosetta54

inpain31, Your situation is text book normal for Chronic Pain,fibro, CF suffers we all go though this and it is painfully sad and hurtful, first find yourself a good pain clinic or Doctor who does believe in fibro and treating pain also tell your GP that you are depressed and if he or she does not want to treat your depression find a GP who believes in Chronic Pain, fibro and CF and even though they might not prescribe pain med they can support you and treat your depression and refer you to a pain psychologist for counselling most Chronic Pain, fibro patient need psychological counsel for dealing with Chronic Pain, fibro, depression and mental stability due to loss of family and friends due to the illness and being made to feel like they are hypochondriacs. Do not give up stay here and vent and ask questions the site can be a life saver. I have had Chonic Pain, fibro, CF for 17 yrs and have been though at least 15 different Doctors before finding the right one. and I had to educated my family and friends about Chronic Pain, fibro, CF and some cared enough to listen and other left. that's there choice I can't fix them. I'm in pain everyday, I don't sleep most of the time and the list go on. I here if you need someone to vent to Big Gentle Hugs and xxx

Dalrymple profile image
Dalrymple

Hi I am so sorry you are feeling so bad ,I do think you need help from two different angles ,you can ask your GP for a referral to your local pain clinic ,also ask if you can have help for your depression ,that could be a councillor or medication ,your doctor may say they don't prescribe pain killers , but they must be able to get the help you need , if not it may be worth trying a new GP .untill you get the help you need keep your chin up and try to stay positive ,we are all here for you anytime you need it hugs Jacqui

Hello

You ask what a GP is, they are our Doctors, (Prime Medical Service Providers) Family Doctor.

They arrange and treat our health issues.

So sorry for your pain.

Sad to say I have suffered chronic pain now for thirty years and the most difficult thing that I found was getting my medications sorted out, it took about six months just to find out if what I was taking was working.

Then they began tuning in dose and finding out if there was a better drug, Medications can be a real problem to fine tune and you sometimes realize that the medications you are taking are a selection that has dissed so many other drugs. Only on NSID has been recommended for me and pain control has not been changed now for about twenty years.

You are saying that your GP is not prescribing medications for you ??, I do not know your condition and I would have thought that it may be a good idea to see an alternative GP who will be more understanding.

If your condition is chronic it may be an idea to suggest some tests to find out what is causing your Complaint.

You say you have an ME is this part of the forces ??, as I do not know what to suggest. All conditions are different

Good Luck

BOB

Hello

So sorry for your pain.

Sad to say I have suffered chronic pain now for thirty years and the most difficult thing that I found was getting my medications sorted out, it took about six months just to find out if what I was taking was working.

Then they began tuning in dose and finding out if there was a better drug, Medications can be a real problem to fine tune and you sometimes realize that the medications you are taking are a selection that has dissed so many other drugs. Only on NSID has been recommended for me and pain control has not been changed now for about twenty years.

You are saying that your GP is not prescribing medications for you ??, I do not know your condition and I would have thought that it may be a good idea to see an alternative GP who will be more understanding.

If your condition is chronic it may be an idea to suggest some tests to find out what is causing your Complaint.

You say you have an ME is this part of the forces ??, as I do not know what to suggest. All conditions are different

Good Luck

BOB

Kimster profile image
Kimster

Chinese medicine can be very effective. Have you tried Corydalis for pain? Here is some info on how to order it:

clients.mindbodyonline.com/...

Just go to Products tab and then type in Corydalis.

This is a very good quality, effective Corydalis by Golden Flower Chinese Herbal Company. You can call 860.536.3880 if you prefer to order over the phone.

jamessteven profile image
jamessteven

BE STRONG, AS HARD AS IT IS, ONLY YOU CAN FIX THIS BY BEING STRONG, ASSERTIVE AND CONFIDENT, NOT ASHAMED OFF YOUR ILLNESS AND SHOUT, SHOUT BLOODY LOUDLY UNTIL SOMEONE HEARS YOU AND HELPS YOU, I PROMISE, IF YIU SHOUT LOUD ENOUGH, YOU WILL GET HELP

Heorte profile image
Heorte

We're here and we hear you. The chances are that you are not crazy but possibly depressed because of the pain which makes normal life and coping impossible at times. Is it any wonder! You need someone who can support you, and sooner rather than later - I made that mistake trying to protect my family from the effects and it nearly beat me completely, so please try to find a counsellor or a support group to attend, and I offer that advice as a one-time sceptic But this is a good place to have a good ol' rant too ;)

Have you any diagnosis for the pain; that must be a starting point?

good luck for 20th

Calceolaria profile image
Calceolaria

What is an MA? It would be amusing if it wasn't so annoying that doctors are refusing to push pills! Sorry, but what else do they do? Ok, I'm generalizing, but really......Apparently, having pushed pulls for decades, they are now worried they might be contributing to a culture of addiction. Too late my friends. But do these drugs really work for chronic pain? To what extent? A lot? A bit? Enough?

inpain31 profile image
inpain31 in reply to Calceolaria

An MA is a medical assistant. They really do not do anything else. I have tried percocet and vicodin. Neither of them worked. They tell me try hot and cold compresses. How am I going to do that to my whole body. I've had this for about 6 years now and now there is nothing on my body that does not hurt.

Calceolaria profile image
Calceolaria in reply to inpain31

We don't have those drugs in the UK. Both seseem to contain opiods but Percocet contains an opioid called oxycodone which I thought had been banned over here? What is your diagnosis?

inpain31 profile image
inpain31 in reply to Calceolaria

I live in the united states so they still give that stuff out. I have also taken tramadol. They both do contain opiats. I have been diagnosed with fibro. But I feel there is something more wrong

Calceolaria profile image
Calceolaria in reply to inpain31

Fibromyalgia is more than enough I would have thought! There are people on this site who have it and there are dedicated website/support groups too. Antidepressants seem to help some people, amitriptyline mainly, or the SSRIs? They interfere with the neuro-receptors which recognise pain. Its best to see a rheumatologist to confirm your diagnosis, if you haven't already. All the best.

marybeex4 profile image
marybeex4

So very sorry to hear about your pain issue. Like many others on this site I can really sympathise with you - there is nothing like having constant pain to wear you down to nothingness!! This site gave me such hope at a time when I was struggling through lonely hours of the night and wondering what i could possibly do. The site helped me to find information available about possible causes of the pain and then when I went to my doc i was able to discuss the problems much more rationally and in turn i was better helped with some pain relief. It doesn't always keep it under control but it does help.

You do have to keep pushing which is hard in itself when you feel so bad. There is help out there somewhere so keep strong and push! Good luck and good wishes to you!!

mitziblue profile image
mitziblue

I'm so sorry sweetheart!!! I totally understand and I get down too. I live alone with my two pups and I feel for you. So what have you been diagnosed with? If you are in pain everyday it wears you down. Have you tried a pain clinic? I took the pain as long as I could and finally accepted I couldn't go on any longer without something to help. Now I have pain but at least it's bearable. I hope this helps. If I can help out in anyway just let me know!!! xxx Mitzi

inpain31 profile image
inpain31 in reply to mitziblue

Thank you :) I have been diagnosed with fibro. But I feel like there is something more. This had really taken a toll on my body. Im only 33 n feel 90. I have a boyfriend and kids that live with me but I still feel alone I always put on a happy face for them. But that is getting harder to do. I have not tried a pain clinic here in Colorado you need get referrals from doctors to see any kind of specialist. Which is ridiculous. But I'm definitely at a breaking point and I am goin to push for the help I need. Thank you :) is nice to know there are people out there who understands.

mitziblue profile image
mitziblue in reply to inpain31

Sweetheart I know how you feel. I never knew how may things go along with Fibro. I've had many... inflammation of the eye, a fungus in my esophagus and bad headaches, not to mention the aches and pains plus the fatigue. The IBS is terrible, as of now I'm looking at possibly having to have surgery for my reflux... they wrap your stomach around your esophagus to trap the acid. It's a never ending story. Hope you get in to a pain clinic as it really does help. xxx Mitzi

inpain31 profile image
inpain31 in reply to mitziblue

I have some of the same issues I feel helpless. I hope all goes well if you do have to have surgery. And even if you don't. It's hard at times isn't it. We all deal with so much and it sadly does not go away. I wish there was a magic pill that took all our pain away and made all who go thru what we go thru better.

mitziblue profile image
mitziblue in reply to inpain31

I know it sweetheart!!! I's very frustrating!!! I go for some tests September 10th. I'm not looking forward to it as they are going to put a probe down my nose into my stomach to watch my esophagus muscles and flap are working. Then sending me home with another one for 24 hours to measure the acid. Guess I'll know something afterwards. I sure hope so. Hope you are feeling better sweetheart!!! xxx Mitzi

inpain31 profile image
inpain31 in reply to mitziblue

I have some of the same issues I feel helpless. I hope all goes well if you do have to have surgery. And even if you don't. It's hard at times isn't it. We all deal with so much and it sadly does not go away. I wish there was a magic pill that took all our pain away and made all who go thru what we go thru better.

louiseamos profile image
louiseamos in reply to inpain31

Hi inpain31.. You sound like how I feel.believe me.I also have server DDD.scoliosis. osteoarthritis. Discs that have moved complete y forward.I feel same been that many gp s gave up..I went to a rumo doctor.told her think I've got dementsure. Fall a sleep.or can't sleep.all my joints hurt real bad.going nuts!!chest pain.has well feel very I'll! At times.rumo said I had also fribo.. At first didn't believe her has never knew what was!?!!..more I've read up more I believe.. I can feel really in well.think my body's giving up!!I am on gabapentin after first day felt bit woooo. But day 2 fine..really..helps.but not sure how.if knew what mean..I too feel am alone I've no one..my other don't understand.. Lost my dad last year..she thinks that's what set a full blown attack on..feel 70 my self..I am 38.. Can't chill..have 3 full on kids...I knew how you feel.....xx

inpain31 profile image
inpain31

Thank you all for your helpfull words. I really appreciate all the help. It's nice to know I'm not alone although I do feel I am. But knowing there are so many people or there that know and understand how I am feeling is very reassuring.

rosetta54 profile image
rosetta54 in reply to inpain31

A GP is a general practitioner (general medicine or internal medicine) not a specialist. Fibro causes a multitude of symptoms it can even mimic lupus. I am also in the US I am in Texas I work with a support group with has many answers to lots of questions on how to cope with fibro and also how to apply for Social Security Disability if you become unable to work. If I can be of further help let me know you can also e-mail me from the support site. I can also try to connect you with a chronic pain doctor or clinic this is completely free there is never a charge we are a volunteer support group we all suffer from chronic pain illnesses. gentle hug and xxx Rosetta

meetup.com/North-Texas-Fibr...

inpain31 profile image
inpain31 in reply to rosetta54

Hi rosetta , I would very much appreciate more info on fibro. I've looked so many things up and some sites pop up with lupus . I'm very frustrated I have kids and am always so tired and half the time not wanting to get our of bed I feel so bad cause I cannot do the things they want. I feel like they are suffering because I'm just not up for anything

johnsmith profile image
johnsmith

No one can give you any answers. There are investigations and research you need to do yourself. How much of the pain is due to something I am doing with my muscles? How much of my pain is due to me not getting enough sleep. How much of my pain is due to stress overload?

Pain medication is not going to help if your pain is due to pressure being applied to a nerve root coming out of the spine. Micro cramps causing muscles to malfunction can lead to pain which pain killers are not going to help.

A GP does not know how to detect micro cramps because he does not carefully feel how a muscle is functioning. Neither do Rheumatologists or orthopaedic consultants carefully feel how a muscle functions.

Muscle functioning is in the realms of Alexander teachers, Massage therapists, Yoga teachers chiropractors etc. This is an area you need to research.

Hope this helps

docnai profile image
docnai

Hi,... Ive have been in the place where you are many many times, i sometimes wonder how im still here. one day somone will believe you and understand the pain you are in. To look at me you would say to yourself what's wrong with him he looks fine to me, you know differant! then someone comes along and says i believe you just by saying those words a weight was lifted off me and i see life differently, that person will come along for you. iff your not around how will you find him/her. Ive been in pain 21yrs now, and im still here. The help you seek is out there you just haven't found it yet...........take care

I look disgustingly healthy bit most of the time feel in pain and ill.When I am told oh but you dont look ill I reply with "well its not my face that hurts ! " . X

inpain31 profile image
inpain31 in reply to

Good response. That is how I feel too. I'm fine on the outside but dying on the inside or atleast That's how it feels. Most people don't understand. My best friend always tells me it's just cause I'm getting old. She makes a joke and I know she tries to make me feel better but it doesn't

in reply to inpain31

I dont really care anymore what others think and I am glad I look healthy.Those who matter know.Those who dont know dont matter! I would ratherpeople believe me to be well I want neither their unbelieving me or pity.I am pretty good at summing people up very quickly can tell the kind who would not believe how ill you feel or talk about you behind your back , the kind to think you are a hypochondriac because they either dont have the intelligence or interest to try to understand my medical problems. Therefore if this type asks me why I dont work instead of saying I am too ill I airily say "oh I married money I am one of the ladies that lunch"Their facescare a picture! XDont let the xxxxxxxxxx get you down love x

Hello

Fibro in the UK would be treated in a proactive manner, if you feel your MA is not treating your condition could you not see the Specialist to assist in making a treatment plan.

With you living in the USA I do not know the charging system for your medications and if out there you are not insured for your medications. Is this a problem on your side of the pond ??

Good Luck

BOB

inpain31 profile image
inpain31 in reply to

I have talked to a doctor the 5th I had believed me and started treat ment but he moved on because we have university hospital and that's where most the doctors do their training I guess so they move on. This last one I had told me I was to young to feel how I feel and told me to take ibuprofen. But I cannot take that because I also have stomach problems and I have tried it but doesn't work.

I do have insurance so paying for the meds and visits is not an issue for now its just finding the right doctor to help and so far I have had but one and cannot find him anywhere

in reply to inpain31

Hello inpain

We all in the UK have problems sometimes understanding your Health System. You say that you have a Training hospital near at hand does that not have a Specialist that can be referred to you by your Insurance Company.

Now I understand that you are in the midst of changing over to the Obama Care system will that have any benefit to you in the future??

Good Luck

BOB

Hello

Our GP is our Prime Medical Service Provider, our Doctor who looks after our health needs and arranges hospital appointments etc

BOB

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