I've found that this condition is rather rare in ladies, I'm 36 and found out recently that I have one.
I've had symptoms on and off for about 5 yrs, since my daughter was born, though it was never bad enough for me to think there may be a real problem until June 2013.
I mentioned to my pain specialist nurse after a particularly painful and frightening experience a few days earlier when I was in Glasgow for a gig, she initially thought it was a rare reaction to the amitriptyline that I take for my back problems and weaned me off.
As I continued to have 'episodes' of not being able to urinate, feeling a lot of pressure while going and it taking a bloody long time to go with stopping and starting and after negative blood and urine tests I was eventually referred to a urologist. He is a rock star, that's for sure, after a year of my gp and the pain clinic passing responsibility of ordering an mri (of my lower back) back and forth the urologist listened to my symptoms and referred me for an urgent mri!! He then arranged a referral to a neuro surgeon despite the mri confirming my back problems were not affecting urination.
I've since had a bladder pressure test and at the start of this procedure, the nurse had difficulty passing the catheter and identifying the likelihood of a stricture. The test results showed high pressure with interupted slow flow. I'm waiting for a cystoscopy to investigate further and a dilation which I believe is unfortunately a temporary relief. I'm also waiting to be taught self catheterisation
I'd really like to hear from any ladies out there who are also suffering with this, to hear about your experiences and treatments