deb2542610 years ago

I haven't got any answers for you rocky, but I wish you well and here is a hug from me.

I keep hoping my back pain will subside and I have really good days. I sometime have viberations thru my body, I put it down to my thyroid.. My head feels really strange sometimes.. But nothing like you describing... Oh I do hope you can get some answers.. Hugs again.x

Calceolaria10 years ago

Rocky, could your symptoms possibly be caused by tension? Emotional tension I think we with CP share and fear ! This can certainly cause muscle tension and every fibre on full alert - fight or flight, adrenalin surging through every cell - it's a very powerful chemical !

Boozybird10 years ago

Don't be embarrassed to go back to the doctor - is there someone who can go with you? best wishes

Hidden10 years ago

Dear Rocky, scans and tests are very unlikely to show a cause for chronic pain. What happens is the whole nervous system becomes sensitised and hyper reactive. A horrible feeling which is just as much emotional as physical (pain science teaches us we must lose the split between mind and body). For some people trauma or surgery kicks off the pain, for others it can just appear. A good book (with lots of pictures, but explains the complex science well) is EXPLAIN PAIN by David Butler and Lorimer Mosley, published by NOI Group, Australia 2003. They have a website too, noigroup.com

Do not lose heart: if you haven''t yet been to a pain clinic you should try that. GPs have no training in managing chronic pain and do not understand it. Specialists have an armoury of 300 meds, many procedures, courses or psych. support on managing feelings, and managing your pain day-day through a combination of exercise, mindfulness, posture and pacing.

You are not weak (pain is used for torture) and your pain is real.

Good luck, Bowbells.

Rocky110 years ago

Thanks Bowbells, it's so hard and I struggle without an explanation as to how can I be in so much pain for possibly no reason. I can barely move my foot and the vibrations are horrendous.. I should be going to a pain clinic soon.. Hope you are ok too

Hidden10 years ago

Try alternative therapists. Even if at the beginning you get an hour or so pain relief thats a bonus that can be added to over the week. They give you things to do at home and you work as fast as your body allows. Increasing slowly over the months.

Its hard work to manage pain, it needs a rethink of how you do things, a change in your environment and lots of nice sessions with alternative therapists. Some will work, others won't but it is loads of fun finding out. And they are so talented, interested and attentive to you. They are not worrying about seeing 20 people in 2 hrs like a gp does.