Can't cope with this horrible pain no more....

[louiseamos]

Starting to feel down in dumbs now...back killing 24 /7.. Wrists knees bottom of both feet..red raw??hurt..upper..middle..new simpton can't hold my arms up for long??shakey too??crawling??think I've got demetsure like gran..and her mam..so on..no family to help..feel so lost..have 3 kids hubby..but no friends!! Lost touch !!had work mates?.but they don't contact me!!had a operation 3 year ago..told had d.d.d but didn't knew were pain was from but op any way???when came to told had spine of 66 year old double my age never been same...hurts to tip this!!!get tired shouldn't drive...feel low....need to knew what's up????

Feeling down'.♠❇

[earthwitch]

I think you are being checked out for ankylosing spondylitis? If so, then do make sure your rheumatologist knows about your raw looking feet - it could be psoriasis, which would mean they might want to consider psoriatic arthritis (another form of spondylitis) as your diagnosis. If you aren't seeing a doctor for a while, get someone to take a photo of your feet so you can take it to the rheumatologist. Are you on any meds? If not, ask your GP to prescribe antiinflammatory meds - NSAIDs like ibuprofen or naproxen, as that would be what the rheumatologist would give you anyway. Ibuprofen and naproxen and meds like them are what a lot of people just consider mild painkillers, but they are much more than that as they are really excellent antiinflammatory meds, which makes them so useful for AS or PsA. If you deal with the inflammation, then the pain reduces heaps. You do need to take them regularly and at full dose though, so if you have been given them, don't hold back and only take them when you are desperate, or they won't work anywhere near as well.

[louiseamos in reply to earthwitch]

Thanks earthwitch..feels like I am banging my head on the wall doctors!!and no one listening too me..end of day all these years even when wentvspine care years ago would of fought would of checked for these things!!my feet kill..had for few year now.but get very red big toes heels heel gets very pain full...no felling in both big toes...

[superannie]

Ask your GP for a referral to a specialist who can deal with your problems. Keep on trying to see someone who can help. Its taken me over two years to get a diagnosis of

degenerative arthritis in the spine.

Go online and see if there are any groups being run in your area such as book clubs, cookery, knitting eg, its a foot in the door. I have found when you are isolated you don't hear of any events happening.

Its very difficult trying to cope with pain and not being able to share your feelings with anyone.

Hope you get some help soon.

Ann

[louiseamos in reply to superannie]

Thank you too superannie..pain can really get you down..helps to keep with same gp..one that listens!!think they think I just want drugs!!told physio that when he matched me to doctors months ago..after all physio no what your spine is Kent to look like..I came out of doctors that day feeling awfull in fact felt I'll for 4 week after...going to see a rumo on Monday but last one I saw fobbed me off..so not that expecting much to be honest!!??stuck in don't help!!xx

[Calceolaria in reply to louiseamos]

Louise, isn't your MRI result due any day now? Also, when you see your rheumatologist, take a list of questions you want to ask and make sure they are answered before you leave.

[louiseamos in reply to Calceolaria]

Hi Calceolaria,,, so doctor rang me one I don't knew so!!more confused!!!said 3 pages but don't have a.s????don't knew why my hip feels out a place???!!this I need tested for fibro???but getting so much pain in my bones that can't walk??said shows bits bobs???what that means?????feel even move deprest now

[Calceolaria in reply to louiseamos]

Well Louise, it seems that the scan is not showing anything drastic. You could ask for a copy of the scan. Perhaps the rheumatologist could take a look and try to explain to you what the scan actually reveals. Which hospital are you under?

[Calceolaria in reply to louiseamos]

Louise, I'm not sure if there is a very scientific test for fibromyalgia apart from a rheumatologist pressing on certain trigger points around the body. This usually forms the diagnosis. Good luck and I hope you get help soon.

[louiseamos]

That's brill advice calceolaria...going to!!yes my MRI should be back Friday ish..but thing is this rumo guy has nothing to do with it??so don't knew how that works x

[mitziblue]

Have you been tested for fibromyalgia?

[louiseamos in reply to mitziblue]

Mitziblue!!hi does fibro really have all mthese simpton s??????ribb stiffness etci

[louiseamos]

Hi.mitziblue.no my cousin has me so does her brother.2 daughters and son!!!yeas all simptons are very same..she had good doctors who ruled everything else out even tested for ms!!!!that's what I need someone who knows what's what

[Hidden]

Sorry you are suffer , Dont know whats causing your problems but I pickef up on you mentioning the crawly feelings.Tnhis sounds like restless legs symptoms, which contrary to its name affects arms, feet and other parts of the body. I have it in legs , arms, feet and shoulders. When you get the crawling feeling does it feel better when you move around and worse when you relax?

[louiseamos]

Hi p1pp1ns. Its hard to say in back and side of my head!sometimes in my arm then leg..toes yes but think!!knew thissounds werriod when feeling comes back in my toes ( big) both in there?????