Hello there, this is my first blog, I wonder if anyone has any advice?
In May this year I had surgery which was a total abdominal hysterectomy for what turn out to be a granulosa cell tumour of the right ovary. This tumour had also caused multiple pulmonary emboli which required 6 months anti coagulation on enoxaparin and then warfarin conversion. I did not need any chemo as the cancer was a stage 1a.
My first follow up was in August 11 and I was to be kept on 3 months follow up. It is now December and my next follow up has been changed by the hospital twice the next one is on 16 January. I wondered why this has been changed on 2 occasions so close together?
I have also been informed that I will not be having any tests and just seen routinely. I find it odd that they do not do CA125 blood tests and what about hormone tests? How are we supposed to know if we are well? I have read about so many women who have these tests as part of their follow up.
Am I allowed to change the hospital where I go for my follow ups? Is it standard to not see the consultant every time you visit? When I went in August I saw one of the doctors from the hospital ward. I feel I have a lot of things that need answering so thought that I would write a list of questions for 16 January.
Thank you for now.