Was first diagnosed with this rare form of ovarian cancer that seems to respond best to surgery only about a year ago, out of the blue. Thought surgery fixed me after ending up in A & E & ending up having full hysterectomy to remove cancerous ovary, after feeling bloated, being full of fluid & then being sick & in pain. All good since then, & felt I was back on track.
Blood tests showed my Inhibin levels rising steadily since last September, scans etc & now about to go back to hospital for exploratory surgery as they think it's back in two places, to see what's there. Bit scared, doctor seems pretty defeated, but I am so determined to fight this damn disease. Shame it's so rare, no one seems to have a definitive answer about how it works, different treatments in each country, little shared information,
Can't see how they can make any diagnosis without more information from exploratory op, but they seem so pessimistic already! Been told it will get me in the end!
My partner is really struggling as all they can see is a future without me. I am trying hard to be positive, any distraction is good, but my partner in such a bad place, unable to see more than a life without me & talking about ways to end everything. I can pull them back most times, but am well at the moment. What happens when I am in pain or not feeling well, how do I do that then??
Anyway, I am pleased to be on this forum. I haven't read much about my type of cancer but figure if it is so damn rare, then no one can predict the outcome. Determined to disprove everyone!