I was diagnosed with granulosa cell tumor in July 2011, they originally thought it was just a cyst as my CA125 was within normal limits (later found out it always will be as the Inhibin is the on that will change). The tumour burst inside me when removed. Then in Oct 2011 I had my right ovary and Fallopian tube removed. As the histology came back that it was cancerous.
I was changed to a gynae/oncologist surgeon. Who monitored me, and I had an USS every 3 months along with blood. She said that it shouldn't return til I was much older and it was the same as what I had researched. She saved my left ovary for future children as I was 25. Thankfully I was able to have a beautiful boy before it returned.
In sept 2014 at my routine USS a cyst was noted on my ovary. So my ovary was removed and Fallopian tube. Why exploring my surgeon found another mass but due to position she had to close me and leave it in so she could consent for other procedures she may have to do.
So feb 2015 she went back in and removed 3 masses and some speckles off my large bowel and bladder. As well as removing my womb and cervix.
They have sent everything off again and attending an appt on 3rd March, bone scan on 11th March and an appt with the integrated medicine hospital in May. As my surgeon said I can't take HRT as it feeds the cancer!!!
I have had 5 surgeries in the last 3 1/2 years and is really getting to me. My surgeon said she personally has never come across where it has come back so quickly.
I have never spoken to anyone else who has had GCT and would love to talk about people's experiences. I am very pleased to find this site. And hope to hear from people soon.