I've just got back from my first three month appointment since the last chemo. Good news is that the CT scan last month showed no disease, and CA125 is at 12, which is not an increase... However, I'm in tears as not only was I waiting an hour and a half past my appointment time which made me quite anxious and sick, but when I asked for a CT and CA125 in 3 months time.. I had a REAL fight on my hands! I was prepared to have to be persuasive given I had a discussion last time (and have previously responded to other ladies who have also had this 'battle' advising them to stick to their guns) but honestly!!! Can't the oncologist see that just waiting to see how I feel is NOT what I can do? I had symptoms which I totally rationalised away leading up to the cancer diagnosis so I CANNOT trust my body to 'tell' me if it's back, and if it was a matter of waiting till I felt ill, why would they still need to see me in 3 months time? Surely I should just go away and go back if/when I felt ill (or dropped dead?). I have lost all my female organs, my chance of motherhood, missed out on months of parties and celebrations and work as I've been sick from the chemo: and to go from knowing what's going on in my body on a regular basis to nothing is too much for me to handle emotionally. Anyway: eventually the onc agreed and I have a CT and bloods next time. I'm knackered now: I can't go through this every time I have a checkup though!!! Anyone with similar experiences??
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