If it Recurs - a new resource from Ovarian Canc... - My Ovacome

My Ovacome

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If it Recurs - a new resource from Ovarian Cancer Canada

11 Replies

Another of my Twitter 'finds'. Looks very useful. ovariancanada.org/OCC-PDFs/...

Linda

11 Replies

Just logged on to this link and bookmarked it as well.. Very useful thank you..

love x G x :-)

Thanks very much for this. Very helpful.

Monique

ScardyCat40 profile image
ScardyCat40

Thanks for this it answered some questions I've been having

LizK profile image
LizK

Very informative. Thank you.

Liz X

Jan76 profile image
Jan76

Thanks Linda ..

I have saved it ...it looks very interesting ....

Thank you very much xx

Love Janet x

nandi profile image
nandi

Wish I had had this 3 years ago!

Many thanks for posting it.

buddy707 profile image
buddy707

Thanks Linda,

Very interesting reading hope i can remember it all (chemo brain)

i have saved it anyway just in case

Luv Janith x

Solange profile image
Solange

Thank you, Linda, for the info about the Canadian site.

I feel better for having read it as it made me feel that maybe my Oncologist has been right in refusing me any more Chemo. Had Taxol and Carboplatin 5 years ago after debulking op. and appeared clear for 3 years. Then found recurrence - pelvis, lymphatic system and rib in back, but told no treatment to be had - " too toxic and wouldn't work anyway". Couldn't understand why as my OC obviously had responded first time. A second opinion came to the same conclusion. Felt bit depressed and "written off" as saw others were having more lines of Chemo, when I looked on this site. However, I've been able to have a fairly good quality of life, apart from getting easily exhausted and suddenly having short bouts of feeling really ill , and had some lovely long times away in our caravan,(with my hair !! ) until recently - so maybe he's been right. My husband and I both felt that the site more or less made the same point with reference to "quality of life". I'm still here and have been able to see some more lovely grandchildren born - numbers 7,8 and 9. I now hope to see my latest grandchild, number 10, due at the end of August.!!

Hope his may help someone else. Has anybody else felt that they've been just left to get on with it?

Good Luck to everyone, Solange xxx

in reply to Solange

Thanks for telling us this, Solange. Sorry you haven't been so well recently but hope you continue to enjoy your present and future grandchildren!

Best wishes

Linda

MargaretJ profile image
MargaretJ

Thanks for that Linda! I do wish, however, tha they would give symptoms one should worry about other than the CA125 levels as I have some symptoms now but very minor and I do not want to turn into one of those fussy whining individuals.

Nice to hear from you again Margaret and I do hope your current worries prove groundless.

Linda

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