Hi, I am new to My Ovacome. I have been searching for a support group for women with OC in my area, only to find that the nearest one is 70 - odd miles away! I came across the Ovacome site and thought this would do the job!
I was diagnosed with stage 3c OC last April, after having a total hysterectomy. During the op, the surgeon noticed some "suspicious" lymph nodes in my pelvic/groin area, which turned out to be cancerous, but could not be removed because attached to major blood vessel.I had a course of chemo (carboplatin/paxlitaxil) 0ver 4 months, which shrunk the tumours. I was then getting bloods checked every month, and in December, my CA125, which had gone down to 40 after chemo, was starting to rise. Had a CT scan at start of this year, which showed enlarged lymph nodes in the chest. I have started another chemo regimen, this time cisplatin by drip every week and etopicide orally. I am due to have another CT scan at beginning of May to find out if this chemo is doing the job. I am not sure whether my OC is now upped to stage 4 as it has spread from the original (abdominal) site. I asked the onc but he did not give me a straight answer!
Over the past 12 months I have met up with some lovely women and we get together on a regular basis. They have all got breast cancer, and I really wanted to talk to some other women who have OC. I have been trawling the internet trying to get some info, but I am sure it is better to talk to people who are going through the same experience as myself.