Hi am Ros: Hi I' am Ros, I was diagnosed with OC... - My Ovacome

My Ovacome

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Hi am Ros

Rossie15 profile image
24 Replies

Hi I' am Ros, I was diagnosed with OC stage 3C but it was not in lymph nodes or organs, this was in July 2016, after surgery and chemo it was gone, but just this is back and so I will be starting Chemo again on Monday. Christmas again, whilst having chemo, I don't feel bad now, and I am glad I am starting early!

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Rossie15 profile image
Rossie15
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24 Replies
Sherrym profile image
Sherrym

Good luck Ros. So sorry this all at Christmas for you

Welcome to the site, Ros.

I hope you find it a great source of friendship, experience and wise words!

Sorry to hear of your recurrence, but it's great you're seeing the positive in getting cracking with treatment.

All the best with it xxx

ShropshireJo profile image
ShropshireJo

Hi Ros. Welcome to our gang. There’s lots of support and encouragement and sharing of experiences here that have made a huge difference to me and many others. All the very best for Monday. Jo 🌻🌺🌼🌸🌹

Rossie15 profile image
Rossie15 in reply toShropshireJo

Thanks so much Jo for such a warm welcome, I really find myself in uncharted waters here, Ros x

airfemale profile image
airfemale

HI Ros welcome to our group. Hopefully Christmas won’t be too terrible for you. I am doing chemo as well. So I know what you are feeling. Lots of love ❤️ Sharon

Hi Ros. I am 3C too. I always think it's a dilemma whether to start early or not. My onc prefers to watch & wait as he says he only has so many weapons to fight it with, so better to wait. However, I think that to wait gives the OC a chance to travel and, even tho' the chemo should fight it off from the new sites it chooses to reside in, it then has those new sites it may re-seed from. If only we had all the answers! Good luck. Pauline.

Rossie15 profile image
Rossie15 in reply to

Hi Pauline, I think this what my Oncologist said to me, if the CT only showed only a few nodes then it is better to watch and wait, but in such a short space of time this cancer has moved very aggressively and so it wasn't an option to watch and wait, they are saying this will work Carbo/Caelyx with 3 to 6 treatments as I am still platinum sensitive, and they are monitoring very closely. The Oncologist says they will treat it like a Chronic Illness.

Rossie15 profile image
Rossie15

Thanks so much, all you beautiful ladies who replied to me, you give me a great deal of support!

Jo-Jo1-UK profile image
Jo-Jo1-UK

HI Ros, I was diagnosed 3c May 16 too, I am so sorry to hear it has come back, what awful news just beforeChristmas. You do sound quite strong and positive though. Hope your treatment goes well. Take care, Jo xx

Colman profile image
Colman

Hi Ros sorry to hear you are having to go through it all over again. Could you tell me how you knew it was back did you have symptoms? I myself have 3c and finished my chemo in June 17. Just find myself always looking and worrying about any little twinge. Good luck on Monday

Claire xx

Rossie15 profile image
Rossie15 in reply toColman

Hi Claire, I see my Oncologist every 3 months, but I started to feel my bones aching, then they it started to hurting when sleeping also a muscular hurt feeling in and below my chest whenever I coughed, sneezed or yawned and then I started to get an irritable bladder and urinated more frequently, so when I went to my Oncologist my markers were only 26 but they were up from 9, he thought it was unrelated but said get a CT scan anyway and thats it was found out, but it is not in the organs, bones or lymph nodes and this chemo should work. I think the thing is that as you are probably seeing your Oncologist every 3 months also, tell him/her everything however small and let them know every concern you have. You know your own body and when something isn't quite right Claire, just make sure you let your Oncologist know. Ros xx

Colman profile image
Colman in reply toRossie15

Thanks Ros. I really appreciate that. I'm due for my 3 month check up in Jan. I have strange ache and pains inside my abdomen it's really hard to explain. I hope the onc offers me a CT scan.

Claire xxxxx

Rossie15 profile image
Rossie15 in reply toColman

I understand exactly what you have said Claire, and if you have concerns then you need to request for a CT scan to be done, if it is nothing, then you have just put all your fears to rest, and if it is something then you can do something about it early! I definitely do know the feeling, as my chemo starts Monday, I am hoping it will get rid of cancer quickly, and it doesn't come back for many years. Thinking of you Claire, Ros xxxx

Agility profile image
Agility in reply toRossie15

Gosh just read this. You could have been describing my symptoms. I hope the chemo stabalises you quickly.

Rossie15 profile image
Rossie15 in reply toAgility

Thanks, Agility, I hope so too!

caf132 profile image
caf132

Hi Ros- sorry you have to start chemo again ESP. at Christmas. At least chemo is easier in the earlier cycles. Thinking of you and your family fight like a girl !

Xx Carol

Rossie15 profile image
Rossie15 in reply tocaf132

Dear Carol, thank you, the Carbo/Taxol was taxing on my body and I got influenza A about three treatments into the first Chemo, I had a week in hospital and 3 transfusions (thank God for Blood donors, wonderful people). So I am hoping the Caelyx/Carbo will not be nearly so bad, but I don't know at this stage how my body will react.

Agility profile image
Agility

Dear Ros I was diagnosed around the same time and stage 3c. It’s recurred for me. There are great women here who understand what you are going through, who are getting on with life and share great information to help. X

Rossie15 profile image
Rossie15 in reply toAgility

Thanks so much Agility!

Sorry this has come back to you. But you have a plan and that is a positive

Rossie15 profile image
Rossie15

Well I am planning on living 20-30years with my beautiful husband and I have a lovely son, so I am not planning on going anywhere soon, with Gods I won't be!

Rossie15 profile image
Rossie15

I am struggling a bit, trying not to have the cancer take over my life, I am determined it is not going to be whole mind and body and life, I have seen this happen to others and they let the cancer take over their personality, and that is scary to me, and I will not let this happen and I will continue to always to see the good things and wonderful experiences in my life which God willing will be a long one.

Hi Ros, This is a good site if ever you need advice or encouragement the ladies are here we all understand what you will be going through, as for Carbo/Caelyx Ive just finished 8 treatment and had good results ,like all treatment it works for some and not for others. Recently we have had ladies on this site having good result I hope if you do go on Carbo/Caelyx that will be the case for you

All the best for Monday take care and a very Merry Christmas to you and your loved ones Lorraine xx 🙋🎄🎄

Rossie15 profile image
Rossie15 in reply tolorraine71-Australia

Dear Lorraine, thanks for the encouragement, I am so glad you got good results from Carbo/Caelyx, I am really happy for you! It makes me feel a lot better. To all the lovely ladies on this site, thank you! Rosxxx

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