I was diagnosed with a rare form of ovarian cancer at the end of March called Primary Peritoneal Cancer (PPC) in Winchester. I decided I wanted to go home to Manchester for treatment and a couple of weeks ago I was seen in the Oncology department at The Christies. My original diagnosis was based on cytology, blood tests and CT scans but The Christie are not happy to start me on chemo because of my age, the fact I appear well and because I've had no tissue biopsy.
I was referred back to a gynaecologist and I met them the next day with the MacMillian nurse. I went into hospital last week to have an omental biopsy under ultrasound. I waited round the ultrasound department on a bed for what seemed like ages and when I finally got put in a room I was told there wasn't enough fluid for a drain (I had a drain 2 months ago). I started to cry and said to the Jnr doctor that he didn't know what he was doing and that I was there for a biopsy not a drain. Then the consultant radiographer came in and had a look at my abdomen under ultrasound but said she couldn't see anything clearly to take a biopsy.
Then I had to wait around more corridors for a CT Scan. They had real trouble finding somewhere to biopsy I don't know why but eventually I was given a local but it was still really painful. I was hoping to find out the results today but now I'm being told that the pathology isn't ready and that I will have to wait a week because that when they have their MDT meetings and we need the biopsy to confirm my treatment plan.
I'm feeling frustrated.....