Apparently I'm unusual in that although my OC has recurred three times, each time I have had chemo I have responded well. Trials of Avastin have so far been limited to 1st and 2nd-line patients. There has been no such trial for 3rd and 4th-line patients (I am the latter) and therefore there is no yardstick against which to judge whether or not Avastin would benefit me.
I asked my Onc why he had initially seemed so sure I would get the drug and he said that I am the first of his patients to be refused, but I am also the only one of his patients who has responded so well to chemo and is still going strong, and therein lies the 'problem'. He is nevertheless going to appeal the decision, despite feeling that it will probably be futile.
BUT - he has said I should not be too down-hearted as there are several other options open to me for the future. I am having my CA125 checked next Monday and if it has gone down I will just carry on with my next four carboplatin, if it has gone up I will have another scan, but for now it is business as usual. Future treatments could involve Gencitabine which he would use only as a single drug because of my wobbly neutrophils, or possibly weekly Taxol, or other drugs he didn't specify - it depends entirely on how I am once this current lot of chemo is over. He said that actually I am doing remarkably well and that I should take a lot of reassurance from that fact.
And I have. I know the OC isn't going to go away, but once again I feel really optimistic that I can continue to keep the bugger at bay, Avastin or no Avastin.
Love to you all